Qualitative Interviews (qualitative + interview)

Distribution by Scientific Domains
Distribution within Medical Sciences

Kinds of Qualitative Interviews

  • in-depth qualitative interview

  • Terms modified by Qualitative Interviews

  • qualitative interview data
  • qualitative interview study

  • Selected Abstracts


    Mothers' attitudes to the randomized controlled trial (RCT): the case of acute lymphoblastic leukaemia (ALL) in children

    CHILD: CARE, HEALTH AND DEVELOPMENT, Issue 5 2005
    C. Eiser
    Abstract Objectives Survival rates for childhood cancer have improved substantially partly as a result of national and international randomized clinical trials (RCT). However, the decision for families is complex and emotional. Our aim was to describe the views of mothers of children newly diagnosed with ALL regarding consent to randomized controlled trials. Design Qualitative interview to explore mothers knowledge, and reasons for involving their child in RCTs. Interviews took place in mothers' homes. Participants Fifty mothers of children with newly diagnosed ALL (age 4,16 years; mean = 7.4) recruited through research nurses at outpatient appointments. Results All but three families had consented for their child to be treated in the RCT, although there was wide variation in their understanding of the aims, costs and benefits. Most mothers reported the aim of the trial to compare ,old' and ,new' treatments. Conclusion Despite detailed verbal and written information, mothers were poorly informed about the purpose of the trial, and possibility of side effects. Individual preferences for either standard or new treatment were routinely reported. The data raise questions about the extent to which families give truly informed consent to recruitment of their child to an RCT. [source]


    Stigma and treatment delay in first-episode psychosis: a grounded theory study

    EARLY INTERVENTION IN PSYCHIATRY, Issue 1 2010
    Lauren Franz
    Abstract Aim: A longer duration of untreated psychosis (DUP) is associated with greater morbidity in the early course of schizophrenia. This formative, hypothesis-generating study explored the effects of stigma, as perceived by family members, on DUP. Methods: Qualitative interviews were conducted with 12 African American family members directly involved in treatment initiation for a relative with first-episode psychosis. Data analysis relied on a grounded theory approach. A testable model informed by constructs of Link's modified labelling theory was developed. Results: Four main themes were identified, including: (i) society's beliefs about mental illnesses; (ii) families' beliefs about mental illnesses; (iii) fear of the label of a mental illness; and (iv) a raised threshold for the initiation of treatment. A grounded theory model was developed as a schematic representation of the themes and subthemes uncovered in the family members' narratives. Conclusions: The findings suggest that due to fear of the official label of a mental illness, certain coping mechanisms may be adopted by families, which may result in a raised threshold for treatment initiation, and ultimately treatment delay. If the relationships within the grounded theory model are confirmed by further qualitative and quantitative research, public educational programs could be developed with the aim of reducing this threshold, ultimately decreasing DUP. [source]


    New labour and reform of the English NHS: user views and attitudes

    HEALTH EXPECTATIONS, Issue 2 2010
    Andrew Wallace PhD
    Abstract Background, The British National Health Service has undergone significant restructuring in recent years. In England this has taken a distinctive direction where the New Labour Government has embraced and intensified the influence of market principles towards its vision of a ,modernized' NHS. This has entailed the introduction of competition and incentives for providers of NHS care and the expansion of choice for patients. Objectives, To explore how users of the NHS perceive and respond to the market reforms being implemented within the NHS. In addition, to examine the normative values held by NHS users in relation to welfare provision in the UK. Design and setting, Qualitative interviews using a quota sample of 48 recent NHS users in South East England recruited from three local health economies. Results, Some NHS users are exhibiting an ambivalent or anxious response to aspects of market reform such as patient choice, the use of targets and markets and the increasing presence of the private sector within the state healthcare sector. This has resulted in a sense that current reforms, are distracting or preventing NHS staff from delivering quality of care and fail to embody the relationships of care that are felt to sustain the NHS as a progressive public institution. Conclusion, The best way of delivering such values for patients is perceived to involve empowering frontline staffs who are deemed to embody the same values as service users, thus problematizing the current assumptions of reform frameworks that market-style incentives will necessarily gain public consent and support. [source]


    Clients' experiences of living at home with a mechanical ventilator

    JOURNAL OF ADVANCED NURSING, Issue 2 2009
    Randi Ballangrud
    Abstract Title.,Clients' experiences of living at home with a mechanical ventilator. Aim., This paper reports on a study of how clients experience living with home mechanical ventilation and how they experience care and supervision of healthcare personnel. Background., The number of people living at home with mechanical ventilators is increasing, and this is considered a successful approach to reducing incapacity and mortality. Method., Qualitative interviews were conducted with 10 service users in 2006. The informants were 18,75 years old and had varying diagnoses and levels of functioning. The interviews were tape recorded, transcribed and analysed by qualitative content analysis. Findings., Two main themes emerged: Theme 1. Having a home ventilator enhances quality of life , a life worth living. The ventilator treatment builds up strength and improves well-being. Participants emphasized that it was important to feel in control of their own situation and had an overriding wish to live a normal and active life; Theme 2. Competence and continuity of healthcare personnel are factors for success. The experience was that competence and follow-up by healthcare personnel varied, and that good quality teaching and information were important. Conclusion., Users of home mechanical ventilators should be active partners in their own care so that their experience is taken into account. It is important for clients having home mechanical ventilation to be empowered and have control in their daily lives, as well as having competent caregivers and continuity of care. [source]


    Evaluating STORM skills training for managing people at risk of suicide

    JOURNAL OF ADVANCED NURSING, Issue 6 2006
    Linda Gask MSc PhD FRCPsych
    Aim., This paper reports a study evaluating the Skills Training On Risk Management (STORM) training initiative in three mental health services in the North-West of England, UK. Background., Training for health workers has been widely advocated as a key route to suicide prevention. However, reports of evaluations are scarce in the literature. In previous research, we have demonstrated that the STORM intervention results in acquisition of new skills and can be disseminated in a community setting. Method., The training was delivered during a 6-month period in 2002 by three mental health nurses who were seconded part-time to the project. The quantitative evaluation, which assessed change in attitudes, confidence, acquisition of skills and satisfaction, used a pretest/post-test design, with participants acting as their own controls. Qualitative interviews were conducted with a purposive sample of 16 participants to explore the impact on clinical practice, and with the three trainers at the end of the study. Findings., Data from 458 staff members were collected during a 6-month period. Positive changes in attitudes and confidence were shown, but previous evidence of skill acquisition was not replicated. Qualitative interviews revealed important insights into changes in clinical practice, particularly for less experienced or unqualified nursing staff, but also concerns about the lack of an educational culture to foster and support such interventions in practice within the organizations. Conclusion., STORM training for the assessment and management of suicide risk is both feasible and acceptable in mental health trusts. However, we remain uncertain of its longer-term impact, given the lack of engagement of senior staff in the enterprise and the absence of linked supervision and support from the organizational management to reinforce skill acquisition and development. We consider that regular supervision that links STORM training to actual clinical experience would be the ideal. [source]


    Swedish Registered Nurses' incentives to use nursing diagnoses in clinical practice

    JOURNAL OF CLINICAL NURSING, Issue 8 2006
    Lena Axelsson BSc
    Aims and objectives., The purpose of this study was to describe Registered Nurses' incentives to use nursing diagnoses in clinical practice. Background., The use of nursing diagnoses is scarce in Swedish patient records. However, there are hospital wards were all nurses formulate and use nursing diagnoses in their daily work. This leads to the question of what motivates these nurses who do use nursing diagnoses in clinical practice. Design., A qualitative descriptive design. Methods., A purposeful sampling of 12 Registered Nurses was used. Qualitative interviews to collect data and a content analysis were performed. Results., Five categories were identified: identification of the patient as an individual and as a whole, a working tool for facilitating nursing care, increasing awareness within nursing, support from the management and influence on the professional role. The principle findings of this study were: (i) that the Registered Nurses perceived that nursing diagnoses clarified the patient's individual needs and thereby enabled them to decide on more specific nursing interventions, (ii) that nursing diagnoses were found to facilitate communication between colleagues concerning patient care and thus promoted continuity of care and saved time and (iii) that nursing diagnoses were perceived to increase the Registered Nurses' reflective thinking leading to a continuous development of professional knowledge. Conclusions., The present findings suggest that the incentives to use nursing diagnoses originate from effects generated from performing a deeper analysis of the patient's nursing needs. Further research is needed to test and validate the usability and consequences of using nursing diagnoses in clinical practice. Relevance to clinical practice., Motivating factors found in this study may be valuable to Registered Nurses for the use and development of nursing diagnoses in clinical care. Moreover, these factors may be of relevance in other countries that are in a similar situation as Sweden concerning application of nursing diagnoses. [source]


    ,You've got to grow up when you've got a kid': Marginalized young women's accounts of motherhood

    JOURNAL OF COMMUNITY & APPLIED SOCIAL PSYCHOLOGY, Issue 4 2008
    Alison Rolfe
    Abstract Teenage motherhood has been a source of considerable debate in policy and media circles in recent years. This paper explores the meanings of teenage motherhood for young women who were mothers before the age of 21, who were living in economically deprived areas of England and most of whom had been in residential or foster care. Qualitative interviews were carried out at several sites across England, with a total of 33 young women taking part in group interviews and one-to-one interviews. The accounts of the young women suggest that they talk about motherhood in three main ways: as ,hardship and reward', ,growing up and responsibility' and ,doing things differently'. It is argued that these ways of talking about motherhood present a different picture of teenage motherhood from that of dominant discourses. Furthermore, the young women are active in negotiating and constructing their own identities as mothers, carers and women. Copyright © 2008 John Wiley & Sons, Ltd. [source]


    Looking at the future and seeing the past: the challenge of the middle years of parenting a child with intellectual disabilities

    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, Issue 6 2005
    S. Todd
    Abstract Background This paper seeks to understand and conceptualize the experience of mothers of adolescents with intellectual disabilities (IDs) at a time in their lives which others have characterized as ,mid-life' or the ,middle years of parenting'. The concerns of the paper are the lifecourse concerns in mothers' own lives and with biographical elements of becoming and being such a parent. Methods Qualitative interviews were conducted with mothers of adolescents with IDs. The average age of mothers was 48 years. Typically parents were interviewed on two to three occasions. Results The data suggest that despite the difficulties they faced, these parents had constructed a ,life-as-ordinary' in the early phase of their parental careers. They saw themselves as ,ordinary mothers'. However, the social content and events of the middle years of parenting prompt a realization that their lives and, for some, their sense of ,self', are undergoing considerable change. Mothers are forced to look over their lives to find the meaning and significance of these events. For some, there is biographical reinforcement. For others, there is only disruption. Discussion The overall picture of these years is one of considerable changes and challenges, and underlines the need for a focus on the lifecourse concerns of parents as well as their children. The implications of the data for further research and service development are discussed in the context of identity theory. [source]


    The manager's role in mobilizing and nurturing development: entrenched and engaged approaches to change

    JOURNAL OF NURSING MANAGEMENT, Issue 3 2010
    BA RGN RHV HVL RNT PGCE, SUSAN M. CARR PhD
    carr s.m. & clarke c.l. (2010) Journal of Nursing Management 18, 332,338 The manager's role in mobilizing and nurturing development: entrenched and engaged approaches to change Aims, Drawing on findings from the evaluation of a Health Action Zone (HAZ), this paper explores the manager's role in promoting and nurturing learning. Background, Initiating practice development is a core function of the manager's role. Learning must be nurtured to reach beyond individual to organizational learning and address knowledge exchange as well as creation. In the United Kingdom, HAZs were established to reduce health inequalities. They embraced a variety of service delivery approaches, all with an emphasis on developing new ways of working and innovation. Methods, Qualitative interviews of the HAZ coordinators, performance manager and staff delivering services. Results, Two alternative ways of engagement and entrenchment to practice were identified to developing new ways of working and learning from experience. Conclusions, Development of sustainable and enduring structures which facilitate learning at both individual and organizational levels are key to utilization of knowledge and accumulation of learning. Implications for nursing management, When entrenched and engaged experiential learning in practice are pursued, the role of the manager as a catalyst needs to be highlighted. A tool is proposed to facilitate reflection and promote action plan development. This tool has potential general application, but our experience is that it makes a specific contribution to public health and primary care. [source]


    Health care managers' perspectives on new nursing and midwifery roles: perceived impact on patient care and cost effectiveness

    JOURNAL OF NURSING MANAGEMENT, Issue 5 2009
    Adv Dip Ed RNT, BSc(Hons), DPhil, DipN(Lond), FRCSI, HUGH McKENNA CBE
    Aims, The aim of this study was to explore new nursing and midwifery roles and associated levels of practice from the health care providers' perspective. This paper will present findings relating to the perceived cost effectiveness of these roles and their impact on patient care. Background, Profound changes in the way the health care systems are organized, managed and financed have resulted in the proliferation of new nursing and midwifery roles. However, the evidence base for these workforce developments is limited, especially with regard to health care providers' perspectives on cost effectiveness and patient outcomes. Method, Qualitative interviews were carried out with all Directors of Nursing in the 18 Health and Social Services (HSS) Trusts and the Chief Nurses and Directors of Primary Care in the four HSS Boards in Northern Ireland. Results, Key findings were as follows: there was widespread support for the development of these roles, they are perceived to have a positive impact on patient care; however, the need for support was recognized to ensure the continuation of such roles. Securing funding was problematic and this was influential on the kind of new roles that were developed. Implications for Nursing Management, Issues relating to effective implementation and the need for further research into the efficacy and effectives of such initiatives is required. [source]


    Patients' experience of learning and gaining personal knowledge during a stay at a mental hospital

    JOURNAL OF PSYCHIATRIC & MENTAL HEALTH NURSING, Issue 5 2008
    L. BORGE ba rpn rnt
    The focus is on voluntarily hospitalized patients' subjective experiences of learning and gaining personal knowledge during a stay at a mental hospital. The aim was to explore and describe patients' learning as personal knowledge acquisition related to the therapeutic process during hospitalization. The study was exploratory and descriptive, with a hermeneutic , phenomenological approach in data collection and analysis. Qualitative interviews were carried out with 15 patients during and after their stay. A re-analysis was conducted. The results underline the importance of the environmental effects on patients' motivation for learning and self-esteem in an acknowledging milieu. Moving towards relearning presupposes that the patient's motivation is aroused. Patients must participate in the treatment and the validity of the knowledge must be tested in the individual patient's life. The patients confirmed and helped each other to increase insight through recognizing each other's problems and reactions. Time in itself seemed to increase self-reflection. Receiving impulses and getting concrete tools through therapy stimulated meaning and hope for future living. The professionals must use a holistic approach including a learning climate in pleasant surroundings and a conjoint contribution from fellow patients and staff. Further research should focus on how to combine therapy with learning , preferably by means of a co-operative inquiry design. [source]


    Support needs and acceptability of psychological and peer consultation: attitudes of 108 women who had undergone or were considering prophylactic mastectomy

    PSYCHO-ONCOLOGY, Issue 8 2008
    Andrea F. Patenaude
    Abstract Objective: Prophylactic mastectomy (PM) offers 90% or greater reduction in risk of breast cancer to women at increased hereditary risk. Nonetheless, acceptance in North America is low (0,27%) and 25,50% of women electing surgery report psychological distress and/or difficulty adapting following PM. Most women also report reduced cancer worry postoperatively. Psychological consultation to aid decision-making and post-surgical coping is not routinely offered. This retrospective, cross-sectional study explored interest in and acceptability of psychological consultation for issues related to PM among 108 women who had undergone or were considering surgery. Method: Qualitative interviews were conducted with 26 healthy women who had undergone prophylactic mastectomy of both (bilateral) breasts (BPM), 45 women who had undergone prophylactic mastectomy of one breast (unilateral contralateral) (UPM) after diagnosis of invasive breast cancer in the other breast or ductal carcinoma in situ (DCIS), and 37 women who were considering having PM surgery. Results: Of the women who had undergone PM, more than half felt pre-surgical psychological consultation was advisable; nearly 2/3 thought post-surgical psychological consultation would be helpful. All women currently considering PM believed psychological consultation would aid decision-making and preparation for surgery. Strong support was reported in all groups for the emotional and informational value of speaking with a woman who had previously undergone PM. Conclusions: Narratives illustrate the nature and intensity of the need for psychological support and describe preferences for the role of the psychologist. Suggestions are offered for integration of psychological services for women deciding about or adapting to PM. Copyright © 2008 John Wiley & Sons, Ltd. [source]


    Help-seeking behaviour for cancer symptoms: perceptions of patients and general practitioners

    PSYCHO-ONCOLOGY, Issue 6 2001
    Jascha De Nooijer
    The aim of this study is to increase our understanding of the relationship between knowledge and interpretation of symptoms, fear and trust on the one hand, and the decision to consult a general practitioner (GP) for cancer symptoms on the other. Qualitative interviews were used to evaluate the various factors. Twenty-three patients and ten GPs were interviewed. A number of factors were found to play different roles for different patients groups, i.e. patients that consult their doctor prematurely, at the right time, or those that delay. A lot of the findings can be tested using various concepts of socio-psychological theory. Further research should provide an improved understanding of the way these models can be applied to help-seeking behaviour. In terms of implications for health education, we conclude that each patient group has different needs and requires different information. Copyright © 2001 John Wiley & Sons, Ltd. [source]


    Understanding how advance care planning is approached in the residential aged care setting: A continuum model of practice as an explanatory device

    AUSTRALASIAN JOURNAL ON AGEING, Issue 4 2009
    Christopher Shanley
    Objective:, To gain an understanding of how advance care planning (ACP) is understood and approached by managers of residential aged care facilities. Methods:, Qualitative interviews with managers from 41 residential aged care facilities from South Western Sydney, Australia. Content and thematic analysis of interview transcripts. Results:, The majority of facilities do not have a systematic approach to ACP, but tend to initiate discussions about end-of-life treatments late in a resident's illness. There are varying degrees to which these discussions are used in ongoing care planning or made explicit if the resident is transferred to hospital. A number of factors are identified that support the implementation of ACP. Conclusion:, A continuum model of practice is proposed that describes four broad approaches to practice under the domains of initiation, scope, follow-up and documentation of ACP as well as the organisational leadership adopted around ACP. [source]


    The family impact of skin diseases: the Greater Patient concept

    BRITISH JOURNAL OF DERMATOLOGY, Issue 5 2007
    M.K.A. Basra
    Summary Background, Although the impact of skin disease on patients' health-related quality of life (HRQoL) is well known, little work has been carried out to determine the secondary impact of a patient's skin disease on the patient's family or partner. Objectives, The aim of this study was to identify the different aspects of a family member's QoL that may be affected by having a family member with skin disease. Methods, Qualitative interviews were conducted with 50 family members/partners of patients attending the outpatient clinic of a university hospital, with a wide range of dermatological conditions (n = 21). Subjects were invited to discuss in detail all the ways that their lives were affected by living with a patient with skin disease. Results, The mean age of subjects (M = 19; F = 31) was 48·1 years (SD = 15·7) most were either parents (44%) or spouses/partners (44%) of the patients. Patients' ages (M = 16; F = 34) ranged from 5 months to 84 years. Fifty-nine aspects of QoL of family members were identified that were adversely affected by the patients' skin disease. These were categorized into 18 main topic areas: Emotional distress (98%), Burden of care (54%), Effect on housework (42%), Social life (48%), Holidays (46%), Financial aspect (30%), Physical well-being (22%), Job/study (40%), Leisure activities (26%), Sleep (20%), Food/drink (12%), Restriction of liked activities (14%), Need for support (12%), People's attitude (10%), Dissatisfaction with medical care (14%), Effect on sex life (8%), Role of religious faith (8%) and Miscellaneous (16%). There was no significant difference between male and female subjects regarding main QoL areas affected. The median number of main topic areas reported per family member was five (mean = 5·2, range = 1,10, SD = 2·64). Conclusions, This study has demonstrated that skin diseases can significantly impair the HRQoL of the patient's family in very diverse ways. Asking family members about this impact is greatly appreciated by them. We propose the ,Greater Patient' concept to describe the immediate close social group affected by a person having skin disease. [source]


    What Makes a Good CAMHS Primary Mental Health Worker?

    CHILD AND ADOLESCENT MENTAL HEALTH, Issue 1 2009
    Sally Bradley
    Background:, The role of primary mental health worker (PMHW) in CAMHS was established in 1995 although comparatively little research has explored the attributes required to successfully undertake this role. Method:, Qualitative interviews with PMHWs and staff working in primary care were conducted and thematic analysis was performed. Results:, In addition to clinical skills and mental health knowledge all respondents consistently emphasised the importance of inter-personal attributes such as general accessibility, flexibility, and self-motivation. Conclusions:, Both professional competencies and inter-personal skills are perceived as important characteristics for PMHWs. It therefore seems appropriate for these to be made more explicit in competency frameworks. [source]


    Evaluating the impact of a cancer supportive care project in the community: patient and professional configurations of need

    HEALTH & SOCIAL CARE IN THE COMMUNITY, Issue 6 2007
    Kristian Pollock PhD MA PGCHE
    Abstract Advances in cancer care and treatment have created a new and somewhat anomalous category of patients with a diagnosis of non-curative disease who still have a considerable period of life remaining. During much of this time they may remain relatively well, without manifest need for clinical care. The responses of patients to this challenging situation are largely unknown. However, it has been assumed that because they confront a difficult experience they will need, or can benefit from, professional intervention. The implementation of pre-emptive support measures is anticipated to improve patients' resilience in coping with their illness and approaching death. This study aimed to investigate the impact of the keyworker role in a 3-year cancer supportive community care project to identify and provide for the needs of patients with a diagnosis of non-curative cancer. It was a qualitative study incorporating face-to-face interviews and focus groups with 19 healthcare professionals and 25 patients and carers from an urban East Midlands locality and a thematic analysis of qualitative interview and focus group transcripts. The project was positively evaluated by patients, carers and professionals. However, the findings raised questions about the different configuration of ,need' within the lay and professional perspectives and how this should most appropriately be addressed. In contrast to widespread professional assumptions about patients' need for counselling, many patients preferred to turn to their friends and families for support, and to adopt a stance of emotional and personal self-reliance as a strategy for coping with their predicament. The study highlights the continuing orientation of services around professional, rather than patient, agendas and the momentum towards increasing specialisation of professional roles and the medicalisation of everyday life that flows from this. [source]


    Hospital inpatients' experiences of access to food: a qualitative interview and observational study

    HEALTH EXPECTATIONS, Issue 3 2008
    Smriti Naithani BSc MSc
    Abstract Background, Hospital surveys indicate that overall patients are satisfied with hospital food. However undernutrition is common and associated with a number of negative clinical outcomes. There is little information regarding food access from the patients' perspective. Purpose, To examine in-patients' experiences of access to food in hospitals. Methods, Qualitative semi-structured interviews with 48 patients from eight acute wards in two London teaching hospitals. Responses were coded and analysed thematically using NVivo. Results, Most patients were satisfied with the quality of the meals, which met their expectations. Almost half of the patients reported feeling hungry during their stay and identified a variety of difficulties in accessing food. These were categorized as: organizational barriers (e.g. unsuitable serving times, menus not enabling informed decision about what food met their needs, inflexible ordering systems); physical barriers (not in a comfortable position to eat, food out of reach, utensils or packaging presenting difficulties for eating); and environmental factors (e.g. staff interrupting during mealtimes, disruptive and noisy behaviour of other patients, repetitive sounds or unpleasant smells). Surgical and elderly patients and those with physical disabilities experienced greatest difficulty accessing food, whereas younger patients were more concerned about choice, timing and the delivery of food. Conclusions, Hospital in-patients often experienced feeling hungry and having difficulty accessing food. These problems generally remain hidden because staff fail to notice and because patients are reluctant to request assistance. [source]


    Physicians "Missing in Action": Family Perspectives on Physician and Staffing Problems in End-of-Life Care in the Nursing Home

    JOURNAL OF AMERICAN GERIATRICS SOCIETY, Issue 10 2005
    Renée R. Shield PhD
    Objectives: To understand the roles of physicians and staff in nursing homes in relation to end-of-life care through narrative interviews with family members close to a decedent. Design: Qualitative follow-up interviews with 54 respondents who had participated in an earlier national survey of 1,578 informants. Setting: Brown University interviewers conducted telephone interviews with participants throughout the United States. Participants: The 54 participants agreed to a follow-up qualitative interview and were family members or close to the decedent. Measurements: A five-member, multidisciplinary team to identify overarching themes taped, transcribed, and then coded interviews. Results: Respondents report that healthcare professionals often insufficiently address the needs of dying patients in nursing homes and that "missing in action" physicians and insufficient staffing create extra burdens on dying nursing home residents and their families. Conclusion: Sustained efforts to increase the presence of physicians and improve staffing in nursing homes are suggested to improve end-of-life care for dying residents in nursing homes. [source]


    Health-related quality of life in persons with long-term pain after a stroke

    JOURNAL OF CLINICAL NURSING, Issue 4 2004
    Marita Widar MSc
    Background., No study has, to our knowledge, previously been published on health-related quality of life (HRQoL) in a group suffering from long-term pain after a stroke. Aim., The aim of the present study was to describe HRQoL in persons with long-term pain after a stroke, and to compare this with different types of pain conditions, age, gender and household status. Design., This study has a design combining qualitative and quantitative methods. Methods., Forty three participants suffering from long-term pain after a stroke were included. A qualitative interview was performed and then analysed by means of latent content analysis. In addition, two self-report questionnaires, SF-36 and the Hospital Anxiety and Depression Scale (HAD Scale), were used. Results., The qualitative data revealed that physical and cognitive functioning, economic security and good relationships, support and having the ability to be together with family and friends were important factors with regard to experienced HRQoL. No significant differences were found in SF-36 and the HAD Scale with regard to the different types of pain. The older age group had decreased physical functioning in SF-36. The men had more decreased vitality than the women. Conclusion., The results show, that the participants in this study have a lower HRQoL due to their long-term pain than those in previous studies on stroke survivors. It is evident that further research is needed with longitudinal studies and larger populations to gain more knowledge and thereby provide better supportive care. Relevance to clinical practice., Awareness and understanding of the patients' perceptions and transitions with regard to their life situation and suffering from long-term pain after a stroke is important in order to support a maintained or increased HRQoL. This is also important after the acute stage and rehabilitation, including quality of life of the relatives, especially to older and dependent persons. [source]


    Quantitative and qualitative assessment of women's experience of a one-stop menstrual clinic in comparison with traditional gynaecology clinics

    BJOG : AN INTERNATIONAL JOURNAL OF OBSTETRICS & GYNAECOLOGY, Issue 9 2001
    Jafaru I. Abu
    Objective A quantitative and qualitative evaluation of the views of patients attending two types of clinics for menstrual disorders. Methods Semi-structured qualitative interview and quantitative questionnaire. Setting Five traditional general gynaecology clinics and a one-stop menstrual clinic, where investigations are performed and results given to patients on the same day. Participants Two hundred and thirty-nine women (126 from the gynaecology clinic and 113 from the menstrual clinic) were recruited into the quantitative study; 18 and 26 patients from the gynaecology and the menstrual clinic, respectively, were interviewed for the qualitative study. Main outcome measures Women's views about their care and progress towards resolution of their problem. Results Following the initial consultation, 106 (84%) of the gynaecology clinic, and 98 (87%) of the menstrual clinic patients completed the first part of the questionnaire. Of those, 75 (71%) and 79 (81%) patients from the two types of clinic, respectively, completed a follow up questionnaire one year later. There were statistically significant differences in all the components of the first part of the questionnaire (information, continuity, waiting, organisation, and limbo) in favour of the one-stop menstrual clinic. After one year, there was a statistically significant difference in one of the components, patient centeredness, but not in overall process co-ordination. The interviews showed that patients attending the menstrual clinic appreciated getting the results of their investigations on the same day. They also found the organisation of the one-stop menstrual clinic more closely suited to their needs and as a result were more likely to feel they were making progress. Conclusion Women were consistently more positive about their experience in the one-stop clinic. One-stop clinics organised to meet the needs of patients might be appropriate for other clinical conditions. The combination of quantitative and qualitative methods is an effective method of assessing patients' views of health services. [source]


    Electronic information resources in undergraduate education: an exploratory study of opportunities for student learning and independence

    BRITISH JOURNAL OF EDUCATIONAL TECHNOLOGY, Issue 3 2002
    Liz McDowell
    The fast,growing array of electronic information resources is often viewed as a significant opportunity for change in education, with shifts towards increased student independence in learning. In order for this to happen students need to develop the capability to deal with information. This qualitative interview,based study examines lecturer perspectives on the roles of electronic information resources in undergraduate education. In line with the phenomenographic tradition, three functional categories of electronic information use are proposed. Firstly, the "electronic academic library" offers new opportunities for access to materials but lecturers indicated minimal change to their teaching approaches. Electronic resources were simply added to reading lists and the responsibility for developing students' information skills was seen to rest with librarians. Secondly, lecturers identified changes towards more constructivist approaches to learning, drawing upon new sources of primary data available electronically and described specific teaching approaches to assist students to develop the relevant information handling skills. Finally, lecturers were uncertain about the value of the wider information resources of the Internet/Web for students and were concerned about variable information quality and the possibilities of plagiarism. The research indicates that information use in student learning is a multi,faceted phenomenon. Much current discussion centres on the concept of information literacy which draws together information skills and subject-related skills and knowledge. Students do not merely require generic information skills but a knowledge of the discipline and the capability to handle complex information. Partnerships between academics and librarians are a way forward in helping students to develop as autonomous information users. Not only do the two professional groups offer different expertise, but they also bring different perspectives on the problematic balance between student autonomy and student support. [source]


    Environmental supply chain management, ISO 14001 and RoHS.

    CORPORATE SOCIAL RESPONSIBILITY AND ENVIRONMENTAL MANAGEMENT, Issue 6 2008
    How are small companies in the electronics sector managing?
    Abstract This study explores the use of environmental management systems for initiating and controlling environmental improvements in the context of supply chain cooperation. It examines how environmental requirements are reaching smaller companies in the electronics supply chain, especially in the light of recent legal changes such as enforcement of the RoHS Directive. It is based on qualitative interviews with environmental and purchasing managers of 21 small and medium-sized companies. The results point out a lack of significant drivers for these companies to implement proactive measures when dealing with environmental issues, owing to limited customer pressure. RoHS and legal compliance are the only environmental customer criteria to be met, while ISO 14001 works as an optional supplier selection criterion. In consequence, companies are not focusing on environmental work within their supply chains, and the potential of influencing the environmental profile of suppliers by shaping their ISO 14001 is not used. Copyright © 2008 John Wiley & Sons, Ltd and ERP Environment. [source]


    Behind the Findings: Yes, the Science Explorations Program Worked, but Why?

    CURATOR THE MUSEUM JOURNAL, Issue 3 2007
    Jill Florence Lackey
    In 2002, with support from the National Science Foundation (NSF) and private donors, MPM launched this after-school program for a target group of urban, mostly minority, middle school girls, a group at risk for underachievement in science and technology. The museum staff built a combined program with five middle schools and also sought to reach out to family members of the participating girls in order to increase support for the young women's science endeavors. A three-year evaluation of the Science Explorations program demonstrated positive findings from primarily quantitative data. An aim of this article is to present findings from the qualitative data to shed light on the reasons this program met nearly all of its targets. Findings from case studies and qualitative interviews suggest that the museum staff's efforts to demystify science,a process that provided ongoing access to real scientific endeavors and invited personal contact with scientists,influenced the program's success. Findings also suggest that strong school liaisons may help increase family support for young women's scientific pursuits, which can in turn play a role in their success in this program. [source]


    Pentecostals: The Power of the Powerless

    DIALOG, Issue 1 2002
    Lene Sjørup
    Many researchers interpret Pentecostalism in terms of external factors such as European and North American history or economics. In this article Pentecostalism is examined from below, through qualitative interviews with women living in poverty in Santiago, Chile. The analysis shows how Pentecostalism led to a new theology where the believer became the subject of her own life. Social ascent was made through ecstatic experiences of the spirit in a caring community which directed the individual towards "a female ethos." This subjective change affected social changes in Chile under dictatorship but not in state politics because parts of the Pentecostal hierarchy collaborated with Pinochet. [source]


    An evaluation of a heroin overdose prevention and education campaign

    DRUG AND ALCOHOL REVIEW, Issue 1 2010
    DANIELLE HORYNIAK
    Abstract Introduction and Aims. Following detection of an upward trend in the frequency of fatal heroin overdoses in Victoria between 2001 and 2003, Victoria's Department of Human Services planned a campaign aimed at increasing injecting drug users' (IDU) awareness of overdose risks and prevention strategies. Stickers, wallet cards and posters featuring five key messages were distributed via needle and syringe programs (NSP) and other drug and alcohol services between November 2005 and April 2006. An evaluation of the campaign was commissioned to be conducted in late 2006. Design and Methods. The evaluation consisted of analysis of three independent data sets,,quantitative data collected from IDU during the campaign period (n = 855 at baseline; and a range of 146,656 at follow up); qualitative interviews with IDU who were NSP clients during the campaign period (n = 16) and qualitative interviews with NSP staff and other key stakeholders (n = 9). Results. While key experts felt that the campaign messages had engendered lasting impact for at least some IDU, these positive impressions were not borne out by the NSP client data, with less than one quarter of all campaign messages being mentioned by a significantly higher proportion of clients during the post-campaign period compared with baseline. Key experts perceived the greatest weakness of the campaign to be the delay between issue identification and the introduction of campaign materials. Discussion and Conclusions. While IDU are generally responsive to health promotion campaigns, future initiatives in this domain should be designed and implemented rapidly and in ways that are sufficiently flexible to cope with shifts in drug markets which could influence the reception of key messages.[Horyniak D, Higgs P, Lewis J, Winter R, Dietze P, Aitken C. An evaluation of a heroin overdose prevention and education campaign. Drug Alcohol Rev 2009] [source]


    Documenting the heroin shortage in New South Wales

    DRUG AND ALCOHOL REVIEW, Issue 4 2006
    CAROLYN DAY
    Abstract Australian heroin markets have recently undergone dramatic change, sparking debate about the nature of such markets. This study aimed to determine the onset, peak and decline of the heroin shortage in New South Wales (NSW), using the most appropriate available methods to detect market level changes. The parameters of the heroin shortage were determined by reviewing: reports of heroin users about availability and price (derived from the existing literature and the Illicit Drug Reporting System); qualitative interviews with injecting drug users, and health and law enforcement professionals working in the illicit drug field; and examining data on heroin seizures over the past decade. There was a marked reduction in heroin supply in NSW in early 2001. An increase in the price of heroin occurred in 2001, whereas it had decreased steadily since 1996. A reduction in purity also occurred, as reported by drug users and heroin seizures. The peak period of the shortage appears to have been January to April 2001. The market appears to have stabilised since that time, although it has not returned to pre-2001 levels: heroin prices have decreased in NSW for street grams, but not to former levels, and the price of ,caps' (street deals) remain elevated. Heroin purity in NSW has remained low, with perhaps a 10% increase above the lowest recorded levels. These data support the notion that the heroin market in NSW underwent significant changes, which appear to have involved a lasting shift in the nature of the market. [source]


    Crack,heroin speedball injection and its implications for vein care: qualitative study

    ADDICTION, Issue 11 2007
    Tim Rhodes
    ABSTRACT Background We report on an exploratory qualitative study investigating drug injectors' narratives of vein damage and groin (femoral vein) injection associated with the injection of crack,heroin speedball. Methods We undertook 44 in-depth qualitative interviews among injectors of crack,heroin speedball in Bristol and London, England, in 2006. Findings The data suggest an emerging culture of crack-based speedball injection. Injectors' narratives link speedball injection with shifts towards groin injection articulated as an acceptable risk, and not merely as a last resort in the face of increased vein deterioration associated with speedball. Accounts of vein damage linked to speedball emphasize ,missed hits' related to the local anaesthetic action of crack, the excess use of citric in the preparation of speedball injections and ,flushing' when making a hit. We find that groin injection persists despite an awareness of health risks and medical complications. Conclusions We emphasize an urgent need for reviewing harm reduction in relation to vein care in the context of shifts to crack-based speedball injection, and the use of the femoral vein, among UK injectors. There is an additional need for interventions to promote safer groin and speedball injecting as well as to prevent transitions toward groin and crack injection. [source]


    Getting it right: designing adolescent-centred smoking cessation services

    ADDICTION, Issue 7 2007
    Sarah MacDonald
    ABSTRACT Aims To demonstrate the importance of identifying adolescent preferences for smoking cessation in order to inform the design of effective adolescent cessation services. Design Structured qualitative interviews drawing on means-end theory. Setting Three youth-clubs and two secondary schools in south-east Wales. Participants Twenty-five male and female 13,18-year-olds, mainly daily smokers. Findings Interviewees did not assume immediately that a smoking cessation service is something that will be available to them, and therefore they initially encountered difficulties in identifying attributes of such support. With further prompting interviewees were able to express a preference for support attributes, but these were not attributes that traditionally form part of cessation provision. Their main preference was for support from friends and family, access to nicotine replacement therapy and non-school-based, flexible support and guidance. Conclusion The results re-emphasize the inadequacies of existing cessation provision for meeting adolescent preferences and suggest that developing more adolescent-appropriate support requires a reconceptualization of existing interventions, with service users situated at the core of intervention design. The study highlights a number of service development points for intervention planners including: rethinking the timing and location of provision; placing more emphasis on the selection of facilitators; harnessing support from friends and family; and rooting these developments in broader tobacco control strategies. [source]


    Immigrant Parents' Concerns Regarding Their Children's Education in the United States

    FAMILY & CONSUMER SCIENCES RESEARCH JOURNAL, Issue 4 2009
    Olena Nesteruk
    A growing body of research suggests that as immigrant families assimilate into U.S. culture, their children's academic achievements and aspirations decline. This article explores possible reasons for this finding from the perspective of immigrant parents from Eastern European countries whose children attend U.S. schools. In-depth, qualitative interviews are conducted with 50 married mothers and fathers who hold professional-status employment. The data are analyzed using open and axial coding approach and three central, recurring themes emerge: (a) Parental Influences: "Education is a must,. The sky is the limit"; (b) The Educational System: "Parental guidance and resources are required"; and (c) Sociocultural Influences: "Everything here is about making money,. But what about our children'" Supporting, illustrative narratives are presented in connection with each theme to explain the perspectives of these immigrant parents on their children's schooling in the United States, and to add other tentative factors for further research into the decline of the children's academic achievement and aspirations with longer residence in the United States. Implications for family and consumer scientists are presented. [source]