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Profound Multiple Disabilities (profound + multiple_disabilities)
Selected AbstractsA Functionally Focused Curriculum for Children with Profound Multiple Disabilities: a Goal AnalysisJOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, Issue 2 2004Annette Van Der Putten Background, This study analysed goals formulated in a functionally focused curriculum called Mobility Opportunities Via EducationÔ (MOVE). Method, The subjects were 49 children with profound multiple disabilities (PMD) who attended a centre for special education where the MOVE curriculum was implemented. Each goal was analysed to see whether or not it was formulated in terms of concrete skills. Furthermore, each goal was analysed for its objective, and it was decided whether or not the goal focused on the child's interests. The three aspects were analysed separately, so the percentages cannot be added up. Results, Ninety-six per cent of the goals were formulated in terms of concrete skills. With regard to the objectives, 53% of the goals dealt with mobility skills and 23% were related to social functioning. Only 14% of the goals dealt with aspects related to care. In 52% of the analysed goals, it was made clear what the interest of the child was. Conclusions, Goals formulated for children with PMD by a curriculum that is based on functionality did not completely satisfy theoretical principles. This can be partially explained because the concept of functionality is a broad and unspecific notion that can be implemented in various ways. [source] Unnoticed post-void residual urine volume in people with moderate to severe intellectual disabilities: prevalence and risk factorsJOURNAL OF INTELLECTUAL DISABILITY RESEARCH, Issue 9 2009K. H. De Waal Abstract Background Increased post-void residual urine volume (PVR) is often seen in geriatric populations. People with intellectual disabilities (ID) have risk factors in common with these populations. Aims To investigate in adults with ID: ,,Feasibility of portable ultrasound bladder scanning; ,,Prevalence of PVR; and ,,Relations with proposed risk factors for PVR. Methods In a cross-sectional design, PVR was measured using ultrasound scanning in 346 adults with moderate to severe ID aged 18,82 years. Relationship between increased PVR and the following risk factors was assessed: age, level of ID, gender, ambulancy, medication, chronic illnesses, incontinence and profound multiple disabilities (PMD). Acceptation of scanning and manageability were noted. Results Feasibility: All participants were cooperatively undergoing the ultrasound scan and all outcomes were sufficiently interpretable. Prevalence: PVR , 150 mL was newly identified in 30/346 persons (8.7%, 95% confidence interval 5.92,12.14). Associations: Higher age (P = 0.001), laxative use (P = 0.001), chronic illnesses other than epilepsy (P = 0.005), profound ID (P = 0.008), incontinence (P = 0.048) and immobility (P = 0.005) are determinants that were associated with urinary retention. Conclusions The bladder ultrasound scan is a feasible method to identify increased PVR in adults with more severe levels of ID. The prevalence of PVR in adults is similar to prevalences found in the geriatric general population. [source] Operationalizing quality of life for people with profound multiple disabilities: a Delphi studyJOURNAL OF INTELLECTUAL DISABILITY RESEARCH, Issue 5 2007K. Petry Abstract Background In a recent study, we constructed an item pool that contains items on the quality of life (QOL) and related aspects of support of people with profound multiple disabilities (PMD). In the present study, a panel of experts assessed the content and the structure of this item pool in order to enhance its validity and usefulness. Method A two-round Delphi study was set up. The panel consisted of 45 experts, of whom 12 were theory-experts, 12 practice-experts and 12 experience-experts from Belgium (n = 12), Germany (n = 12), the Netherlands (n = 11) and the UK/Ireland (n = 10). Both quantitative and qualitative methods of analysis were applied to the data. Results The majority of the items were considered relevant for the QOL of people with PMD. In the first round, 91% of the items reached the 80% criterion of consensus. In the second round, 78.7% of the items reached the 85% criterion of consensus. There were no significant differences in opinion neither between types of experts nor between countries. Several items were reported as missing in the item pool and were added. Conclusions The results provide some evidence that the item pool is a valid operationalization of QOL of people with PMD and can be used in an instrument to measure the QOL of this target group. [source] The Life Satisfaction Matrix: an instrument and procedure for assessing the subjective quality of life of individuals with profound multiple disabilitiesJOURNAL OF INTELLECTUAL DISABILITY RESEARCH, Issue 10 2005G. Lyons Abstract Background Assessing and measuring subjective quality of life (QOL) for individuals with profound multiple disabilities (PMD) remain amongst the most difficult challenges for theorists and practitioners in the field. The usual approaches using proxy reporting by familiar others have been demonstrated to be of questionable reliability and validity for persons with PMD. Method The author's continuing research into understanding the nature of subjective QOL of these individuals has led to the development and evaluating the Life Satisfaction Matrix (LSM), an instrument and procedure for assessing the subjective QOL of these individuals. Results Qualitative research that provides empirical evidence to support the assumptions underpinning, and face validity of, the LSM is described in this article. Conclusion Results of the study described herein demonstrate some potential to meet and overcome the above-mentioned challenges to assess and measure the subjective QOL of individuals with PMD. [source] Assessing indices of happiness and unhappiness in individuals with developmental disabilities: a reviewBEHAVIORAL INTERVENTIONS, Issue 3 2007Courtney M. Dillon The behavioral deficits of individuals with profound multiple disabilities (PMD) make it difficult to assess their satisfaction and quality of life. To address this problem, researchers have recently evaluated affective behavior (i.e., indices of happiness and unhappiness) to document the effects of therapeutic interventions and to assist with clinically relevant decisions. We review the recent literature on indices of happiness and unhappiness and discuss its major themes. In addition, potential concerns with this technology are discussed and clinical recommendations are provided. Copyright © 2007 John Wiley & Sons, Ltd. [source] A new microswitch to enable a boy with minimal motor behavior to control environmental stimulation with eye blinksBEHAVIORAL INTERVENTIONS, Issue 2 2005Giulio E. Lancioni This study assessed whether a boy with profound multiple disabilities and minimal motor behavior would be able to control environmental stimulation using repeated eye blinks with a newly developed microswitch (i.e. an electronically regulated optic sensor mounted on an eyeglasses frame). The study was carried out according to an ABAB design and included a 3 month post-intervention check. Data showed that the boy had a large increase in the target response (repeated eye blinks) to activate the microswitch and produce environmental stimulation during the B (intervention) phases. This performance was maintained at the post-intervention check. Practical and developmental implications of the findings were discussed. Copyright © 2005 John Wiley & Sons, Ltd. [source] Parents as experts: the position of parents of children with profound multiple disabilitiesCHILD: CARE, HEALTH AND DEVELOPMENT, Issue 6 2002K. I. De Geeter Abstract Background Parents of children with disabilities are increasingly considered as experts in the field of care. Their expertise can deliver an important contribution towards planning their child's care and education. The law is increasingly taking this factor into consideration. On the one hand, parents already possess an abundance of know-how; on the other, they still have to increase their knowledge and sometimes their skills too. Aim The purpose of this study is to demonstrate the supposition that co-operation between parents and professionals must meet certain criteria if parents are to receive a proper chance of using their existing knowledge, while at the same time adding to their skills. Design A questionnaire was sent to 723 parents of children with profound multiple disabilities enquiring about their relationship with the professionals at their child's school for special education. Subsequently, for one group of parents, a method that recognizes the parents' expertise and assigns them a formal role was introduced. For the other group, no change in method occurred. Results The results demonstrate that parents regard co-operation in a favourable light. Comparing both groups after a year, the expected effect of the method (a better rating of the co-operation by the parents) could not be demonstrated. This is probably a result of a problem with the questionnaire used in this study. Conclusion Other studies, however, appear to support our supposition. [source] | ||||||||||