Home About us Contact
|
Home About us Contact | ||
|
|
||
Parents' Responses (parent + response)
Selected AbstractsParent responses to participation in genetic screening for diabetes riskPEDIATRIC DIABETES, Issue 4 2004Barbro Lernmark Abstract:, Screening for type 1 diabetes (T1DM) risk in newborns has little negative emotional impact on mothers. In this study, the impact on the mother and the father was evaluated both in the general population and in families with diabetes. All parents with a newborn in Skåne, Sweden, were invited to a screening for T1DM risk in their children (the Diabetes Prediction in Skåne (DiPiS)). Blood was obtained at delivery from the mother and the child. When the child was 2 months old, parents gave written consent and filled out questionnaires, but were not informed about the genetic risk. Of the 10 538 invited families, 6831 (64.8%) consented and 806 (7.7%) declined participation. Five questions addressing both parents were filled out by 6676 (63.4%) mothers and 6099 (57.8%) fathers. In 146/6676 (2.2%) families, one family member had diabetes (D-families). Participation in DiPiS did not affect most parents and the majority was satisfied with the information. The majority of parents (28.9%) were reassured and only 1.1% (140/12 670) reported increased worries because of participation, compared to 2.8% of the mothers in D-families. Parents in D-families more often ascribed diabetes risk to their child as well as the risk being higher. Mothers and fathers differed in their answers on four of the five study questions, with mothers being more satisfied with the information, reporting more knowledge of diabetes, estimating lower risk of their child to get diabetes, but reporting more worries of possible future chronic disease in the child. Parents with lower education, being born abroad, or being younger who reported worries of chronic disease in the child were also reassured by participation in the study. These results confirm that screening for T1DM risk in newborns does not create worries in most parents, but stress that fathers differ from mothers in opinions and reactions, that parents' reactions are affected by diabetes in the family, and that demographic factors might be important for the parents' reports. [source] Costs of caring for a child with cancer: a questionnaire surveyCHILD: CARE, HEALTH AND DEVELOPMENT, Issue 4 2007C. Eiser Abstract Background Current therapies for childhood cancer have resulted in improved survival rates. However, this has been achieved at considerable price to families, with financial costs including additional expenditure and loss of earnings having been described. The impact of these extra costs for UK families and the extent to which help from charities and government benefits is able to alleviate this is unknown. Methods Questionnaires concerning income, expenditure, employment and financial support were completed by 145 parents, recruited from three United Kingdom Children's Cancer Study Group treatment centres. Results Parents' responses highlighted increased expenditure related mainly to travel to treatment centres. The majority of families (55%) had spent between £50,100 in the past week over and above pre-illness expenditure, with a further 18% spending more than £100. Many parents (mainly mothers) had either given up or reduced outside employment in order to care for their child and this was associated with further financial problems for 42.7% of families. Despite help from charities and government benefits for the majority of families, extra costs were associated with money worries for 68.3% of families. Conclusions Although families are offered timely information about their entitlement to benefits, financial problems are incurred by families of a child with cancer partly because legislation prevents benefits being claimed for the first 3 months of a child's illness , the time when expenses are still at their highest. Furthermore, because benefits are backdated only to the point at which the claim was made, families do not recoup all their costs. Waiving of the 84-day wait period for children undergoing chemotherapy and radiotherapy, and the introduction of weekly bridging payments while a Disability Living Allowance claim is being assessed, would ameliorate this problem and so improve the treatment experience for families. [source] Emotion Regulation as a Mediator of the Relation Between Emotion Socialization and Deliberate Self-HarmAMERICAN JOURNAL OF ORTHOPSYCHIATRY, Issue 4 2009Kelly E. Buckholdt MS This study examined (a) whether retrospective reports of specific parent responses to sadness (i.e., reward, punishment, neglect, override, magnification) were related to deliberate self-harm (DSH) and (b) whether difficulties regulating emotions (i.e., difficulties monitoring, evaluating, and modifying emotions) mediated those relations. One hundred eighteen college students completed measures of parental emotion socialization, emotion regulation difficulties, and DSH. Parental reward and override of sadness were directly related to lower DSH scores. Parental punishment and neglect of sadness were related to higher DSH scores, and these associations were mediated by difficulties evaluating emotions. In other words, parental punishment and neglect of sadness may place individuals at risk for DSH by fostering negative evaluations of emotional experiences and the belief that nothing can be done to effectively manage emotions. [source] The influence of attachment representation on parental perception and interpretation of infant emotions: A multilevel approachDEVELOPMENTAL PSYCHOBIOLOGY, Issue 5 2010Gottfried Spangler Abstract The aim of the study was to investigate parental perception and interpretation of infant emotional expression depending on their attachment representation. Forty-six parents' responses to infant pictures depicting positive, neutral, and negative emotions were assessed on the level of affective judgments (valence, arousal), mimic responses (facial muscle activity), and of the eyelid reflex (using the startle paradigm). Results revealed small differences between parents of different attachment representations with respect to their subjective evaluations. However, secure parents, as compared to insecure ones, showed a positive bias in their mimic responses to infant pictures. The modulation of the startle response indicated a negative evaluation of negative infant emotion expressions in dismissing parents, while an augmentation of the startle response to negative infant emotions could not be observed in secure and preoccupied parents. The findings highlight the role of attachment experiences for emotional information processing in parents and its consequences for parental behavior. © 2010 Wiley Periodicals, Inc. Dev Psychobiol 52: 411,423, 2010. [source] Parental perception and interpretation of infant emotions: psychological and physiological processesINFANT AND CHILD DEVELOPMENT, Issue 4 2005Gottfried Spangler Abstract To study parental experience and perception of infant emotional expressions parents' responses to infant pictures depicting positive, neutral and negative emotions were assessed on the level of affective judgments (perceived and experienced valence and arousal), of mimic responses (facial muscle activity) and of the eyelid reflex (using the startle paradigm). In general, while parents were able to appropriately perceive infant emotions and were clearly affected by them, they exhibited a bias for positive interpretation. This was obvious from their subjective evaluations which, e.g. were more positive for experienced than for perceived valence, as well as from their mimic responses indicating positive responses in general. In addition, infant pictures including the negative ones lead to an inhibition of the startle reflex, indicating a positive evaluation of infant emotions on the sub-cortical level. These effects were most prominent when parents were faced with pictures of their own infants as compared to unfamiliar ones. The way parents process information about infant emotions may facilitate appropriate responsiveness to infants' needs. Copyright © 2005 John Wiley & Sons, Ltd. [source] The quality of life for cancer children (QOLCC) for Taiwanese children with cancer (part II): Feasibility, cross-informants variance and clinical validityPSYCHO-ONCOLOGY, Issue 3 2004Chao-Hsing Yeh The quality of life in childhood cancer (QOLCC) is a research instrument that has been developed to assess the quality of life for children and adolescents who suffer from cancer in Taiwan. The current paper is the second of a two-part series of research reports. Part I is reported in this journal (Yeh et al., 2003). Part II describes the range of measurement, concordance of cross-informants reports, and clinical validity of Taiwanese pediatric cancer children (7,12 years) and adolescents (13,18 years) and their parents/caregivers. Due to the cognitive ability of children and adolescents, data were analyzed for children and adolescent separately. The validity of cross-referenced information between parent and child forms was subsequently examined using Pearson product correlation. The feasibility (percentage of missing values per item) and range of measurement [percentage of minimum (floor effect) and maximum (ceiling effect) possible scores] was calculated for the five QOLCC and the total scale score. The findings of medium to high correlation of the patient/parent responses strongly imply that relevant information might be obtainable through parents when children are unable or unwilling to complete the assessment instrument. Feasibility for the QOLCC was very good. Copyright © 2003 John Wiley & Sons, Ltd. [source] | |||||||||||||