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Informal Support (informal + support)
Selected AbstractsThe culture of giving: informal support and gift-exchange in early modern England , By Ilana Krausman Ben-AmosECONOMIC HISTORY REVIEW, Issue 2 2009JUDITH M SPICKSLEY No abstract is available for this article. [source] Formal support of stroke survivors and their informal carers in the community: a cohort studyHEALTH & SOCIAL CARE IN THE COMMUNITY, Issue 6 2008Chantal Simon PhD MSc MRCGP Abstract This cohort study, aims to explore formal care provision to stroke survivors and their informal carers in the community in the UK. An initial cohort of 105 cohabitant carers of first-time stroke patients was recruited while the stroke patient was in hospital. Structured face-to-face interviews were carried out with carers prior to discharge of the stroke patient home, at 6 weeks after discharge, and 15 months after stroke. Questionnaires included measures of psychological health (CIS-R), physical health (self-rated health), social well-being (relationship quality and Sarason's social support questionnaire), handicap of the stroke survivor (Oxford Handicap Scale) and formal community support (amount of formal support and carer satisfaction). Multiple services were involved with most survivor,carer pairs (mean 5.4; range 2,9; SD = 1.7), and 74% of carers were satisfied with formal support provided. Number of services decreased with time (5.5 versus 4.1, t = 4.201, d.f. = 52, P < 0.001, 95% confidence interval: 0.71,2.01) but not time allocated. Using stepwise linear regression, service provision early after discharge was predicted by: level of handicap, recruitment centre, carer self-rated health, number of informal supporters and other care commitments. Satisfaction was predicted by quality of informal support and activity restriction. Fifteen months after stroke, predictors of formal care were: level of handicap, quality of informal support and previous caring experience. Predictors of satisfaction were: quality of the relationship between the stroke survivor and carer, age and mood. Quality of services was good, but carers lacked information, had insufficient help and were not consulted enough. Carer distress is common, yet not currently a factor influencing support provision. Formal care provided adapts with time reflecting the importance of quality of support from friends and family rather than quantity of informal supporters. These factors should be taken into consideration when planning and providing formal support for stroke survivors and their carers. [source] Proximity to death and participation in the long-term care marketHEALTH ECONOMICS, Issue 8 2009France Weaver Abstract The extent to which increasing longevity increases per capita demand for long-term care depends on the degree to which utilization is concentrated at the end of life. We estimate the marginal effect of proximity to death, measured by being within 2 years of death, on the probabilities of nursing home and formal home care use, and we determine whether this effect differs by availability of informal care , i.e. marital status and co-residence with an adult child. The analysis uses a sample of elderly aged 70+from the 1993,2002 Health and Retirement Study. Simultaneous probit models address the joint decisions to use long-term care and co-reside with an adult child. Overall, proximity to death significantly increases the probability of nursing home use by 50.0% and of formal home care use by 12.4%. Availability of informal support significantly reduces the effect of proximity to death. Among married elderly, proximity to death has no effect on institutionalization. In conclusion, proximity to death is one of the main drivers of long-term care use, but changes in sources of informal support, such as an increase in the proportion of married elderly, may lessen its importance in shaping the demand for long-term care. Copyright © 2008 John Wiley & Sons, Ltd. [source] Parents of Adults with Intellectual Disabilities: Quality of Life and Experiences of CaringJOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, Issue 2 2000Sarah Walden This study examined a UK sample of parents caring for their adult offspring with intellectual disabilities, and the factors contributing to their quality of life and experiences of caregiving. Structured interviews were conducted with 62 parents of adults with intellectual disabilities. On several indices of quality of life, parents did not seem to be functioning as well as caregiving parents in the US, or as well as adults in the general US population. The offspring's level of challenging behaviour and physical dependency and the parent's satisfaction with informal support were associated with parental quality of life. The salience that parents placed on their post-parental life style was also associated with quality of life, with ,captive' parents faring more poorly than ,captivated' parents. [source] Empowerment in parents of school-aged children with and without developmental disabilitiesJOURNAL OF INTELLECTUAL DISABILITY RESEARCH, Issue 12 2005J. S. Nachshen Abstract Background Despite the widespread use of the term ,empowerment' in clinical literature to describe both a desirable process and the outcome of service delivery, the term remains more of a theoretical than practical construct. This study examined the factors that contribute to empowerment in parents of school-aged children with and without developmental disabilities (DD) using the Double ABCX model of family adaptation contrasted with the linear ACBX model. Methods Parents of children with (n = 100, 97% mothers) and without (n = 100, 98% mothers) DD completed questionnaires relating to child behaviour problems, parent stress and well-being, and formal and informal support. Structural equation modelling was used Results Parents of children with DD reported more child behaviour problems, more stress, less well-being and more social support than parents of children without DD. Structural equation modelling supported the ACBX model for both groups. A linear relationship was found in which parent well-being and resources mediated the relationship between the stressor (child behaviour problems) and the outcome (empowerment). Conclusions The results of the current study support Hastings and Taunt's assertion in 2002, in that empowerment was adequately explained using a traditional model of family functioning. The significant prediction offered by the parent's resources points to the need to deliver services in a manner that is more family-centred. In the education system, this means providing parents with clear messages regarding the schools goals, clarifying the parent's rights and responsibilities, including the parent in planning and decision making, respecting their knowledge as caregivers and supporting their hopes for their child. [source] Family Disruption and Support in Later Life: A Comparative Study Between the United Kingdom and ItalyJOURNAL OF SOCIAL ISSUES, Issue 4 2007Cecilia Tomassini Global population aging has led to considerable disquiet about future support for frail older people; however, the determinants are poorly understood. Moreover, most industrialized societies have witnessed considerable changes in family behavior (e.g., rises in divorce and declining fertility). Such trends may have adversely affected the support systems of older people; nonetheless, only recently has research begun to address this issue. Employing data from the longitudinal British Household Panel Survey (1991,2003) and the 1998 Indagine Multiscopo sulle Famiglie "Famiglia, soggetti sociali e condizione dell'infanzia," we investigated the association between family disruptions due to divorce, separation, or death and three key dimensions of informal support: (i) frequency of contact with unrelated friends (among all respondents aged 65 years and over); (ii) co-residence with children (among unmarried mothers aged 65 years and over); and (iii) regular or frequent help received from children (e.g., household assistance including care) among parents aged 65 years and over. In addition, we conducted a comparative investigation of the relationship between family disruptions and the use of home care services (i.e., health visitor or district nurse; home help; meals-on-wheels) among parents aged 65 years and over. Our findings suggest that in a culture like the U.K.'s, where relations between kin are primarily influenced by individualistic values, support in later life appears to be primarily related to need, whereas in societies with a strong familistic culture (like Italy's), support is received irrespective of the older person's individual characteristics. [source] Volunteering and health among older people: a reviewAUSTRALASIAN JOURNAL ON AGEING, Issue 2 2003Jenny Onyx This paper presents a review of the available literature on the relationship between volunteering and health among older people. There is consistent evidence that morbidity rates, functional health indices, self reported health and life satisfaction are affected by formal and informal volunteering. Some studies suggest that the benefits of volunteering are reciprocal, in that both those who give and those who receive assistance benefit. The evidence is consistent with the proposal that social capital is generated through volunteering. It is likely that the presence of high levels of social capital supports and maintains the health of older persons, provides informal support in times of sickness and stress and thus enhances quality of life as well as reducing or delaying the onset of illness and death. [source] Why rape survivors participate in the criminal justice system,JOURNAL OF COMMUNITY PSYCHOLOGY, Issue 2 2010Debra Patterson After a rape, survivors may seek help from multiple community organizations including the criminal justice system (CJS). Research has found that few survivors report their assaults to the police and of those who do report, many withdraw their participation during the investigation. However, relatively little is known about the factors that lead survivors to participate in the CJS, and how other community services provided by forensic nurses or victim advocates may also help encourage survivor engagement. In the current study, 20 survivors who reported their victimizations to police within a large Midwest county were interviewed about the factors that influenced their involvement in the CJS. Further, we examined the role that the police, forensic nurses, and victim advocates played in their participation. Using qualitative analyses, our findings suggest that informal supports hold a strong role in the reporting process and formal supports are influential in survivors' engagement in the investigational process. © 2010 Wiley Periodicals, Inc. [source] African-American Developmental Disability Discourses: Implications for Policy DevelopmentJOURNAL OF POLICY AND PRACTICE IN INTELLECTUAL DISABILITIES, Issue 1 2005Peggy S. Terhune Abstract, Formal developmental disabilities services are often underutilized, especially by low-income African-American families. This study examined the basis for interactions and service use preferences of African-American woman who cared for an adult female child with a disability. Diverse African-American perspectives were observed by analyzing the discourse of 11 low-income African-American carers using a direct informant interview technique. Two distinct discourses were identified: a "secular professional" discourse and a "spiritual kin" discourse. Families using the secular professional discourse made use of formal developmental disabilities services in a manner similar to European-American heritage families. Families using the spiritual kin discourse tended to rely on natural or informal supports rather than the developmental disabilities service system, as the system did not exemplify the values that these families profess. It was observed that the discourses result in two distinct worldviews, and two distinct ways of accessing the developmental disabilities system. Recommendations are proffered for changes within the developmental disabilities service system to accommodate diverse cultures and families. A key recommendation involves modifying the system to accommodate worldviews of disability other than the currently used scientific biomedical view. [source] The Importance of Context in Fostering Responsive Community Systems: Supports for Families in Systems of CareAMERICAN JOURNAL OF ORTHOPSYCHIATRY, Issue 1 2010James R. Cook The importance of helping families of children with severe emotional disturbances (SED) connect with informal or natural supports,that is, individuals who are part of their ongoing communities and daily lives,has been widely recognized. Utilization of informal supports has thus become a core element within systems of care (SOCs) designed to improve services for children with SED and their families. However, research demonstrates that implementation of wraparound, the key practice approach within SOCs, often does not include involvement of informal supports. Using a measure of social connectedness (SC), developed to augment the instruments used for the SOC national evaluation, this study assessed parents' and caregivers' views of their connections to and support from their community within a SOC. Overall, parents and caregivers reported low levels of support across multiple sources as well as a desire for more support. Greater levels of perceived support related positively to caregiver strain, types of and satisfaction with services received, and views of their communities as supportive and safe. Greater attention to families' contexts and the identification of effective ways to connect families to their communities are recommended. [source] Local area co-ordination: strengthening support for people with learning disabilities in ScotlandBRITISH JOURNAL OF LEARNING DISABILITIES, Issue 4 2008Kirsten Ogilvie Stalker Accessible summary ,,Local Area Co-ordination is a new, person-centred way of supporting people with learning,,disabilities and their families to have a good life in the community. ,,There are 59 local area co-ordinators in Scotland. ,,There are a lot of differences in the way these local area co-ordinators work; for example,,,who they work for, how many people they support, whether they support children or adults,,and how much money they are paid. ,,People with learning disabilities and their families really like their local area co-ordinators.,,They feel the local area co-ordinator is on their side. ,,Local area co-ordinators have helped people in lots of ways, like finding supports and,,services, getting a paid job and moving house. They help people join new groups and meet,,people. ,,We think the Scottish Government should pay for more local area co-ordinators in Scotland,,and write new guidelines about how to do local area co-ordination. Summary This paper reports the findings of a study commissioned by the Scottish Executive which examined the introduction and implementation of local area co-ordination (LAC) in Scotland. A questionnaire about their posts was completed by 44 local area co-ordinators, interviews were conducted with 35 local area co-ordinators and 14 managers and case studies of LAC practice were carried out in four local authorities. The study found both strengths and weaknesses in the implementation of LAC nationally. There was great unevenness across Scotland in the number of local area co-ordinators employed by local authorities and in their roles and remits. Progress in community capacity building was slow overall and some managers expressed mixed feelings about LAC's usefulness in a climate of scarce resources. Individuals and families, however, were very appreciative of the support received and there was evidence that LAC had made a positive difference to their lives; for example, in relation to increased inclusion, choice and formal and informal supports. Various proposals are made for supporting the future development of LAC. [source] | |||||||||||||