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Family-centred Care (family-centred + care)
Selected AbstractsWhat does partnership in care mean for children's nurses?JOURNAL OF CLINICAL NURSING, Issue 3 2007Dip N, Polly Lee MSc Aim and objective., To explore partnership in care with a small sample of children's nurses in an inner city trust. (i) To obtain local data on what a sample of children's nurses understand by partnership in care and to what degree partnership in care is evident in their practice; (ii) where feasible, to compare these data with national and international literatures describing partnership in care and provide pointers that will be useful in contributing and responding to the children's national service framework. Background., Partnership in care has been practised within children's nursing in UK for over a decade, but is an amorphous topic. More recently, it has been suggested that partnership in care can be described as a part of the spectrum of family-centred care. An exploratory study with 10 experienced children's nurses was undertaken to determine what they understood by the term partnership in care. Results., Seven categories emerged from the data: attitudes, respect for family, communication, parent understanding, effective partnership, all parties (satisfied) and improved well-being. Conclusion., It is suggested that a negative approach to one of the first four categories leads to ineffective partnership in care. Relevance to clinical practice., Attitudes, respect for the family and communication should improve to enhance the practice of partnership in care. Respect for the child and family and communication have both been identified as important qualities within the new National Service Framework for Children, Young People and Maternity Services. Further research is suggested to determine the applicability of these findings to other members of the multi-disciplinary team. [source] Negotiation of parental roles within family-centred care: a review of the researchJOURNAL OF CLINICAL NURSING, Issue 10 2006Jo Corlett MSc Aims and objectives., To review research published in the past 15 years about how children's nurses' negotiate with parents in relation to family-centred care. Background., Family-centred care is a basic tenet of children's nursing and requires a process of negotiation between health professionals and the family, which results in shared decision-making about what the child's care will be and who will provide this. The literature highlights inconsistencies in the degree to which nurses are willing to negotiate with parents and allow them to participate in decisions regarding care of their child. There is need to explore further the extent to which nurses communicate and negotiate shared care with children and their parents. Conclusions., Three themes emerged from this review of the literature relating to whether role negotiation occurred in practice, parental expectations of participation in their child's care and issues relating to power and control. Parents wanted to be involved in their child's care but found that nurses' lack of communication and limited negotiation meant that this did not always occur. Nurses appeared to have clear ideas about what nursing care parents could be involved with and did not routinely negotiate with parents in this context. Relevance to clinical practice., For family-centred care to be a reality nurses need to negotiate and communicate with children and their families effectively. Parents need to be able to negotiate with health staff what this participation will involve and to negotiate new roles for themselves in sharing care of their sick child. Parents should be involved in the decision-making process. However, research suggests that a lack of effective communication, professional expectations and issues of power and control often inhibit open and mutual negotiation between families and nurses. [source] Danish parents' experiences when their new born or critically ill small child is transferred to the PICU , a qualitative studyNURSING IN CRITICAL CARE, Issue 2 2005Elisabeth OC Hall Abstract The aim of this study was to describe Danish parents' experiences when their newborn or small child was critically ill. Thirteen parents were interviewed. Data were analysed using qualitative content analysis. The child's transfer to the paediatric intensive care unit (PICU) meant either help or death for the parents. The back transfer was experienced as joy and despair. The parents had confidence in most nurses, and they were kind, helpful, informative and capable. Less capable and distressed nurses made the parents feel uncomfortable and insecure. Parents need help and support during their child's transfer to and from the PICU. Critical care nurses have to discuss the policy of family-centred care. [source] Evaluation of the processes of family-centred care for young children with intellectual disability in Western AustraliaCHILD: CARE, HEALTH AND DEVELOPMENT, Issue 5 2010A. Wilkins Abstract Introduction Government early intervention services for children with intellectual disability (ID) in Western Australia have adopted the model of family-centred care. The aim of this study was to evaluate how well it was being practised, to describe the pattern of service utilization and to identify factors influencing parental perceptions of family-centred care. Methods The study included children aged 0,6 years with ID, who were registered clients of Disability Services Commission, Western Australia. Parents completed a postal survey questionnaire about the frequency and type of services received and their perceptions of services using the Measure of Processes of Care (MPOC-56) questionnaire. Mean scores for the five MPOC domains were compared using anova against the independent variables of child age group, child diagnostic group, service type and frequency, place of residence, family and demographic variables. Significant variables in each domain were then entered into multivariate analyses. Results Of 292 eligible families, 165 (59%) returned a completed questionnaire. While over 50% of children had contact with occupational, speech and physical therapists at least once per month, less than 20% of children had at least annual contact with either psychology or dental services. Families rated their satisfaction highest for ,respectful and supportive care' and lowest for ,providing general information'. Individual item analyses indicated less satisfaction with ,co-ordinated and comprehensive care'. Higher means were associated with more frequent contact with occupational therapy. Conclusion Overall respondents reported early intervention services for young children with ID in Western Australia provided satisfactory family-centred care by means of the 56-item MPOC. The frequency of contact with allied health professionals was positively associated with parental ratings of family-centred care. The study indicates under-servicing in dental care and psychology services. [source] Parent participation in paediatric rehabilitation treatment centres in the Netherlands: a parents' viewpointCHILD: CARE, HEALTH AND DEVELOPMENT, Issue 2 2007R. C. Siebes Abstract Aim, The importance of family-centred care and services has been increasingly emphasized in paediatric rehabilitation. One aspect of family-centred care is parent involvement in their child's treatment. The aims of this study were (1) to describe how, and to what extent parents are involved in the paediatric rehabilitation treatment process in the Netherlands; (2) to determine the level of parents' satisfaction about the services they and their child have received; and (3) to describe what ideas parents have to enhance their involvement in the treatment process. Methods, A total of 679 parents of children aged 1,20 years who participated in our longitudinal study on family centred care in the Netherlands. The children had various diagnoses and were treated in nine out of 23 Dutch paediatric rehabilitation centres. A random sample of 75 parents was interviewed within 4 weeks after completion of the Measure of Processes of Care and the Client Satisfaction Questionnaire. A Quality of Care cycle with six stages was used to structure the evaluation. Results, The data showed that parents are involved in all stages of their child's rehabilitation process in various ways. The average level of parent satisfaction about the services received was high. According to the interviewed parents, the communication between professionals and parents, parents' involvement in goal setting, and parents' involvement in treatment could be improved upon. Conclusion, Parents are to a large extent involved in all stages of the treatment process in Dutch paediatric rehabilitation settings. Although parents valued the services received, they suggested various ways to enhance parent participation. [source] | ||||||||||