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Family Scale (family + scale)
Selected AbstractsCoherent Accounts of Coping with a Chronic Illness: Convergences and Divergences in Family Measurement Using a Narrative AnalysisFAMILY PROCESS, Issue 4 2003BARBARA H. FIESE Ph.D. Researchers and clinicians have shown increasing interest in family narratives as an avenue for accessing the family meaning-making process. In this study, we examine the convergences and divergences between narrative assessment, family self-report, and verbal accounts of family climate. Sixty-two families with a child with pediatric asthma were interviewed about the impact that asthma had on family life. These interviews were coded for narrative coherence, relationship expectations, and engagement with the interviewer. Primary caregivers were also interviewed using the Five Minute Speech sample (FMSS) and completed self-report assessments of family functioning (Family Assessment Device [FAD] Impact on the Family Scale [IOF]). Contrary to prediction. Narrative coherence was higher in those cases where Emotional Over-involvement (EOI) was present on the FMSS. Narrative coherence and engagement with the interviewer were positively related to self-report of family problem solving, communication, and affective responsiveness as measured on the FAD. Divergences and convergences between different types of family measurement are discussed in light of meaning-making processes associated with coping with a chronic illness. [source] Neurodevelopmental impairment: Predictors of its impact on the families of extremely low birth weight infants at 18 months,INFANT MENTAL HEALTH JOURNAL, Issue 6 2008Bonnie E. Stephens Effects on a family of a child with chronic illness have been described. The Impact on Family Scale (IOF) was developed to measure these effects. The impact of extremely low birth weight (ELBW) infants with neurodevelopmental impairment on families is unknown. This study determined IOF scores for families of ELBW infants with increasing degree of impairment at 18 months and identified factors that increase vulnerability to impact. A total of 3,849 ELBW infant survivors born at the 16 centers of the National Institute of Child Health and Human Development Neonatal Research Network between January 1993 and February 2001 were assessed at 18 to 22 months. Infants were divided into four groups by degree of impairment. IOF scores were analyzed by impairment group. Multivariate analyses assessed effects of impairment, social/demographic factors, unmet service needs, and resource utilization on the IOF. A total of 1,624 (42.2%) infants had moderate/severe impairment. Increasing severity of impairment was associated with higher IOF scores. Severity of impairment contributed 6% of variance to the IOF scores. Twenty-one percent of variance was contributed by additional medical needs, low socioeconomic status (SES), and lack of social support. Although increasing severity of impairment impacts families of ELBW infants, significantly more impact is contributed by additional medical needs, low SES, and lack of social support. [source] Family support, perceived self-efficacy and self-care behaviour of Turkish patients with chronic obstructive pulmonary diseaseJOURNAL OF CLINICAL NURSING, Issue 8 2007Magfiret Kara Ka Aim., The purpose of this study was to describe family support, self-efficacy perception and self-care behaviour among patients with chronic obstructive pulmonary disease and to ascertain the relationship between these variables. Background., It is important to work at improving confidence in the patients' ability to follow a self-care regimen by increasing self-efficacy. Family support also plays an important role in self-care activities. Method and design., The study design is descriptive and correlational. Of 230 patients with chronic obstructive pulmonary disease who were recruited for the study, 200 agreed to participate. The patients were recruited by the first author from an outpatient clinic in the Department of Chest Disease of a university hospital and a pulmonary hospital in Erzurum, eastern Turkey. Data were collected by using a demographic data form, the Perceived Social Support from Family Scale, the Chronic Obstructive Pulmonary Disease Self-efficacy Scale and the Alberto Chronic Obstructive Pulmonary Disease Self-care Behaviour Inventory. Results., Although most participants (91·5%) perceived that they had family support and more than three quarters (73·0%) of the participants engaged in an adequate amount of self-care behaviours, only twenty five participants' (12·5%) perceived self-efficacy as high. There were statistically significant positive relationships between family support and self-care behaviour (r = 0·302; p = 0·01) and between self-efficacy and self-care behaviour (r = 0·186; p = 0·01). There was also a statistically significant positive relationship between family support and self-efficacy (r = 0·412; p = 0·01). Conclusion., The results of the study demonstrated weak to moderate, but statistically significant, relationships between family support and self-care behaviours, self-efficacy and self-care behaviour and family support and self-efficacy in Turkish patients with chronic obstructive pulmonary disease. Relevance to clinical practice., The assessment of the family support, self-efficacy and self-care behaviours of the patients with chronic obstructive pulmonary disease should be an essential part of nursing practice. The study also provides the foundation for the conduct of future studies of self-care training for managing patients with chronic obstructive pulmonary disease. [source] Quality of life, health satisfaction and family impact on caregivers of children with developmental delaysCHILD: CARE, HEALTH AND DEVELOPMENT, Issue 2 2009R. L. Hsieh Abstract Objective To study the quality of life, health satisfaction and family impact on caregivers of children with developmental delays in Taiwan. Design Cross-sectional study. Subjects The caregivers of children with diagnoses of developmental delays recruited from a teaching hospital in northern Taiwan. Methods The main caregivers of 48 male and 22 female children with developmental delays were recruited. WHOQOL-BREF for health-related quality of life (HRQOL), PedsQL-Health Satisfaction for health satisfaction, PedsQL-Family Impact Module and Impact on Family Scale for family impact were evaluated. The correlation of caregivers' HRQOL, health satisfaction and family impact were also studied. Results Caregivers in nuclear families had higher health satisfaction scores (78.2 for nuclear families vs. 66.9 for extended families, P < 0.05) when assessed by the PedQL-Health Satisfaction questionnaire. Children's age was negatively correlated with family impact, including parent (,0.272, P = 0.023), family (,0.262, P = 0.029) and total scores (,0.281, P = 0.018) as assessed using the PedsQL-Family Impact Module. Conclusion A negative relation between impact of burden and child's age suggests that family members gradually adapt to the delayed developmental status in their children as they grow. Caregivers in nuclear families having higher health satisfaction than those in extended families may be due to Chinese cultural effects. [source] | ||||||||||