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Emotional Support (emotional + support)
Selected AbstractsAssessing unmet supportive care needs in partners of cancer survivors: the development and evaluation of the Cancer Survivors' Partners Unmet Needs measure (CaSPUN)PSYCHO-ONCOLOGY, Issue 9 2007K. Hodgkinson Abstract Background: Partners of cancer patients typically provide the majority of patients' emotional and physical care. Partners may be profoundly affected by the cancer and may experience ongoing supportive care needs across the survivorship continuum. Research has been restricted by a lack of psychometrically evaluated measures and in this study, a self-report measure of partners' needs was developed and empirically evaluated. Methods: Questionnaire items generated from a qualitative study were constructed into a 47- item unmet need measure (Cancer Survivors' Partners Unmet Needs measure, CaSPUN). The psychometric properties of the CaSPUN were evaluated in 212 partners of patients who had been diagnosed with cancer 1,11 years earlier and were currently disease-free. Results: The CaSPUN was modified to include 35 unmet need items, 6 positive change items and an open ended item. The CaSPUN demonstrates a high level of acceptability, internal consistency and construct validity, although test,retest reliability was moderate. Factor analysis identified five discrete factors: (1) Relationships, (2) Information, (3) Partner Issues, (4) Comprehensive Care and (5) Emotional Support. Conclusions: The CaSPUN permits the identification of long-term supportive care needs in generic populations of cancer survivors' partners and will assist with the formulation of recommendations regarding required supportive care services. Copyright © 2006 John Wiley & Sons, Ltd. [source] Factors associated with the coping of parents with a child in psychiatric inpatient careINTERNATIONAL JOURNAL OF NURSING PRACTICE, Issue 5 2001Tiina Puotiniemi MSc The purpose of this study was to establish the parental coping' factors associated with having a child in psychiatric inpatient care. The data were collected from 19 hospitals with child psychiatry units. At the time of data collection, all parents of children in psychiatric inpatient care in these hospitals were recruited. The method of data collection was a questionnaire (n = 79). The data were analysed with the Statistical Package for the Social Sciences (SPSS) for Windows statistical software. The connections between variables were studied with cross-tabulation, and the ,2 test was used to determine significance. Changes in internal and external family relationships and matters related to the upbringing of the child with mental problems statistically correlated significantly with parental coping (P < 0.001). Problem-oriented and emotionally-oriented coping strategies, skills and palliative strategies correlated significantly with parental coping (P < 0.001). Emotional support, support for the care and upbringing of the child in inpatient care, and love and acceptance also had statistically significant associations with parental coping (P < 0.001). [source] Jordanian nurses' job stressors and social supportINTERNATIONAL NURSING REVIEW, Issue 1 2008S.H. Hamaideh rn Purpose:, This study describes stressors of Jordanian nurses and the social support they received to decrease the influence of these stressors. The relationships between the two concepts, and each with the sample's demographics were assessed. Predictors of nurses' stressors as well as social supportive behaviours were also studied. Methods:, A descriptive correlational research design was used. The Nursing Stress Scale and the Inventory of Social Supportive Behaviours were used to collect data from a convenience sample of 464 Jordanian nurses who were working in 13 Jordanian hospitals. Results:, Workload and dealing with issues of death and dying were the most prevalent stressors among Jordanian nurses. Emotional support was the most supportive social behaviour Jordanian nurses reported that they usually receive. Significant correlations were found between nurses' stressors and social supportive behaviours, as well as between nurses' stressors and shift worked, level of education, and model of nursing care provision. Additionally, significant correlations were found between social supportive behaviours and commitment for work and units' decision-making style. Shift worked, nurses' educational level and model of nursing care provision were the best predictors of the nurses' stressors. Shift worked, model of the nursing care provision, marital status and unit's organizational structure were the best predictors of the social supportive behaviour. Conclusions:, Nursing interventions are needed to decrease nurses' stressors; these will help nurses to perform safely their jobs. Various types of social support are needed, particularly emotional support. [source] Correlates of mood disturbance in women with breast cancer: patterns over timeJOURNAL OF ADVANCED NURSING, Issue 6 2008Diane Von Ah Abstract Title.,Correlates of mood disturbance in women with breast cancer: patterns over time Aim., This study examined factors associated with mood disturbance prior to, during and after adjuvant therapy. Background., Breast cancer is the most common cancer in women worldwide. Mood disturbance affects between 20% and 30% of women with breast cancer and is associated with other debilitating symptoms. However, factors associated with mood disturbance across the breast cancer diagnosis,treatment trajectory are not clearly understood. Method., A stress-coping framework guided this longitudinal study. A convenience sample of 49 American women with newly diagnosed breast cancer aged 37,77 years completed questionnaires assessing age, optimism, disease stage, type of adjuvant therapy, lymph node status, emotional support, aid (tangible) support, perceived stress and mood disturbance. Data were collected over an 18-month period in 2002,2003 at three time points: prior to, during and after adjuvant therapy. Descriptive statistics, Pearson's correlation and multiple regression were used. Findings., At all three time points, higher stress was significantly related to greater mood disturbance. Perceived stress mediated the relationship between (1) emotional support and mood disturbance prior to and after adjuvant therapy and between (2) aid support and mood disturbance during adjuvant therapy. In addition, the type of support that was most important to mood disturbance varied over time. Emotional support was related to reduced mood disturbance prior to and after adjuvant therapy, whereas aid support was most important during adjuvant therapy. Conclusions., Nurses may use this information to develop interventions that bolster appropriate types of support to reduce stress and ultimately lower mood disturbance. Further research across cultures is needed. [source] Quality of life in stroke patientsACTA NEUROLOGICA SCANDINAVICA, Issue 5 2003K. Jaracz Objectives , To describe global and domain-specific quality of life (QOL) after stroke and to identify the factors that are important for post-stroke QOL. Material and methods , A hospital-based sample of 72 stroke patients was followed up for 6 months after stroke onset. QOL was assessed using the Polish version of the Quality of Life Index. Regression analysis was performed to identify the variables that best predicted QOL. Results , The overall QOL of stroke patients was relatively good, although worse than that of subjects in a comparison group. The highest QOL was found in the ,Family' domain, and the lowest in the ,Health and functioning' domain. Emotional support, depression and functional disability were three separate variables explaining 38% of the variance in QOL. Conclusions , Strengthening of family support, treatment of depression and reduction of physical dependence may be the decisive factors in improving post-stroke QOL. [source] Post-stroke quality of life and depressionACTA NEUROPSYCHIATRICA, Issue 5 2002Krystyna Jaracz Background: Studies on the determinants of the quality of life (QOL) after stroke bring differing results depending on the applied concept of QOL. This may lead to confusion about the contribution of various factors to the post-stroke QOL. Objective: The aim of the study was: (i) to investigate functional and psychological QOL in the individuals after the first ischemic stroke; (ii) to identify the most important correlates of QOL; and (iii) to examine the significance of depression among the other possible predictors of QOL. Methods: A hospital-based sample of 72 stroke patients was followed up to 6 months after stroke onset. QOL was assessed using the Polish version of the Quality of Life Index and the Sickness Impact Profile. A multiple regression procedure was performed to examine relationships between QOL and the study variables. Results: In spite of good recovery, the psychological and functional QOL of the examined patients was impaired, although the negative impact of stroke was greater on the objective QOL than on the subjective QOL. Stroke-related impairment, depression, functional disability and marital status predicted 80% of the variance in the functional QOL. Emotional support, depression and functional disability explained 38% of the variance in psychological well-being. Conclusions: Depression and physical disability were the most important predictors of QOL after stroke since their impact on QOL was more robust in comparison to the remaining variables. For improving QOL, a comprehensive care for patients aimed at reducing physical dependence and ameliorating depressive symptoms could be recommended. [source] Predicting health-related quality of life of parents of children with inherited metabolic diseasesACTA PAEDIATRICA, Issue 7 2009Janneke Hatzmann Abstract Aim:, The aim of this study was to examine medical, socio-demographic and psychosocial determinants of health-related quality of life (HRQoL) of parents of children with metabolic diseases. Methods:, A survey among parents of children with metabolic diseases (children aged 1,19 years, diagnosed >1 year before the start of the study, living at home). Parents were approached through the Emma Children's Hospital, and through a national parent and patient association. HRQoL was assessed using the TNO-AZL Questionnaire for Adult's Health Related Quality of Life (TAAQOL), describing 12 domains of HRQoL. Predictor variables were taken from a self-report questionnaire. Univariate and multivariate logistic regression analyses were performed to predict which parents were at risk for HRQoL impairment. Results:, Mainly psychosocial determinants were predictive for parental HRQoL. Emotional support was protective for parental HRQOL while loss of friendship was a risk factor for HRQoL impairment. Medical and socio-demographic variables did not consistently predict parental HRQoL. Conclusion:, Psychosocial determinants appeared more important in predicting parental HRQoL than medical and socio-demographic variables. Interventions should be focused on supporting parents combining the care for their children with a social life. Further research on this subject is necessary. In the meantime, involved medical specialists should pay structural attention to parental functioning. [source] Pro-eating disorder websites: users' opinionsEUROPEAN EATING DISORDERS REVIEW, Issue 3 2007Emese Csipke Abstract The phenomenon of ,pro-eating disorder' websites remains relatively unexplored by researchers in published formats. Supporters of the sites claim beneficial effects but health professionals worry that the sites propagate disordered behaviours. The present study addressed visitor characteristics and perceived impact of visits. A 24-item questionnaire supplemented with the Eating Attitudes Test-26 (EAT-26) was developed and posted on the website of the UK mental health charity SANE. Participants who interacted with others on the sites and sought emotional support reported improved mental state after visiting, and for them, evidence was found of reduced impact from potentially damaging content. ,Silent browsing' in order to sustain a disorder was found to be mainly harmful. ,Silent browsers' may be particularly vulnerable to a worsening of their symptoms in the absence of beneficial effects from emotional support, but those who interact and find support could face a danger of a different sort. © 2007 John Wiley & Sons, Ltd and Eating Disorders Association. [source] Reciprocal support provision: personality as a moderator?EUROPEAN JOURNAL OF PERSONALITY, Issue 3 2006Nina Knoll Abstract In some cases, support provision can be predicted by the history of prior social exchange. Receiving may encourage providing. Moreover, personality dispositions may moderate the degree to which persons reciprocate support. Co-student dyads (N,=,43) facing an exam repeatedly reported their levels of received and provided support. Data revealed both direct and moderated reciprocal support provision. Actors' receipt of emotional support predicted the subsequent change in actors' provision of emotional support, indicating reciprocity. Also, more reciprocal emotional support provision was found in introverted and open individuals, whereas more reciprocal instrumental support provision was observed in introverts and less open individuals. Findings were partially validated when partner-provided support instead of actor-received support served as the predictor of later support provision. Copyright © 2006 John Wiley & Sons, Ltd. [source] What is the perceived nature of parental care and support for young people with cystic fibrosis as they enter adult health services?HEALTH & SOCIAL CARE IN THE COMMUNITY, Issue 1 2010Nicola Iles RN MSc Abstract The majority of those diagnosed with cystic fibrosis (CF) now live to adulthood. In response to increased survival age, transition services have been developed to ensure smooth transfer from paediatric to adult specialist healthcare, although the majority of treatment and care continues to be delivered in the home. However, little is known about how young adults and staff conceptualise the nature of the parental role after young people have left paediatric care. The aim of this study is to explore the nature of parental support that is perceived to be available at this time. As part of a larger study of transitional care, semi-structured interviews were conducted with 50 young people with CF aged 13,24 years (32 with experience of transition and/or adult CF services) and 23 specialist healthcare professionals (14 working in adult care) across two CF centres in Southeast England. Interviews took place in young people's homes or within CF services, using a topic guide and were recorded, transcribed and analysed thematically. Four domains of perceived parental support were identified by the young people interviewed, with varying degrees of continuity into adult care: (1) Providing non-clinical practical and emotional support; (2) Acting as ,troubleshooters' in times of health-related crisis; (3) Working in partnership with offspring in ongoing disease management in the home and clinic; (4) Acting as ,protectors' of their children. Young people and service staff expressed tensions in managing parental involvement in post-paediatric consultations and the degree to which parents should be aware of their offspring's deteriorating health and social concerns. Parental anxiety and over-involvement was perceived by many young people and staff as unsupportive. We suggest that although health and social care providers are mindful of the tensions that arise for those leaving paediatric services, the place of parental support in adult care is currently contentious for these ,new' ageing populations. [source] An emotive subject: insights from social, voluntary and healthcare professionals into the feelings of family carers for people with mental health problems,HEALTH & SOCIAL CARE IN THE COMMUNITY, Issue 2 2009Ben Gray BA PhD Senior Research Fellow CCCU Abstract Caring for people with mental health problems can generate a whole range of positive and negative emotions, including fear, disbelief, guilt and chaos as well as a sense of purpose, pride and achievement. This paper explores the emotions of family carers from the perspectives of social, voluntary and healthcare professionals. Sixty-five participants were interviewed, the sample included directors, managers and senior staff from social, voluntary and healthcare organisations. Participants were encouraged to talk in detail about their understanding of the emotions of family carers. Findings highlight a rich understanding of the broad spectrum of carer emotions and the huge emotional adjustments that are often involved. Diagnosis was seen to be imbued with negative emotions, such as fear, anger and denial. However, feelings of hopelessness and desolation were often counterbalanced by feelings of hope, satisfaction and the emotional rewards of caring for a loved one. Participants noted a clear lack of emotional support for family carers, with accompanying feelings of marginalisation, particularly during transitions and especially involving young carers as well as ethnic minorities. By way of contrast, carer support groups were suggested by professionals to be a holistic, effective and economical way of meeting carers' emotional needs. This paper explores the challenge of family carer emotions from the perspective of managers and practitioners and draws out implications for research, policy and practice. [source] Investigating the nature of formal social support provision for young mothers in a city in the North West of EnglandHEALTH & SOCIAL CARE IN THE COMMUNITY, Issue 6 2006Angela McLeod BA (Hons) MPH Abstract Young mothers often require support to remain socially ,included' after becoming pregnant and this, in its turn, could protect their health. In this context, new policy initiatives aimed at tackling social exclusion, such as those implemented under the National Teenage Pregnancy Strategy, could be working to build social support mechanisms. The present paper addresses the issue of whether statutory services do in fact deliver ,social inclusion', through the provision of appropriate social support for young mothers. Data are drawn from semistructured interviews with service providers from a variety of different settings. The questionnaire was structured around an established model of social support, developed by M. Barrera, called the Inventory of Socially Supportive Behaviours. The study took place in a deprived inner city in North West England. Eleven participants were interviewed from seven separate organisations. The findings indicate that there were well-developed referral systems between services, with services adopting a social model of health. Much informational and emotional support was provided. What was less clear is how services are enabling social support to be developed amongst peer groups accessing the services particularly at community level. It is questionable to what extent services are able to foster the development of social support through social activities and support groups, and even whether it is appropriate to expect them to do so. In some sense, services go some way to delivering social inclusion, in that they are providing advice about income, housing and other opportunities. However, services appear to be missing an opportunity to foster social inclusion through the lack of development of supportive networks amongst groups of peers, which may have implications for the health of young mothers. [source] How Does the Comforting Process Work?HUMAN COMMUNICATION RESEARCH, Issue 3 2006An Empirical Test of an Appraisal-Based Model of Comforting Burleson and Goldsmith's (1998) comforting model suggests an appraisal-based mechanism through which comforting messages can bring about a positive change in emotional states. This study is a first empirical test of three causal linkages implied by the appraisal-based comforting model. Participants (N = 258) talked about an upsetting event with a confederate trained to display low, moderate, or high levels of person centeredness and nonverbal immediacy. After the conversation, participants completed several scales. Latent composite structural equation modeling was used to examine the model, which showed that person-centered and immediate emotional support exerted a direct effect on emotional improvement. Above and beyond this direct effect, person-centered comfort also encouraged people to verbalize their thoughts and emotions. These verbalizations facilitated cognitive appraisals, which in turn exerted a strong direct effect on emotional improvement. Mediation analyses further suggested that verbalizations of positive emotion words in conjunction with reappraisals partially mediated the influence of person-centered comfort on emotional improvement. [source] Focused attention in toddlers: measurement, stability, and relations to negative emotion and parentingINFANT AND CHILD DEVELOPMENT, Issue 4 2008Bridget M. Gaertner Abstract This longitudinal study examined individual differences and correlates of focused attention when toddlers were approximately 18 months old (T1; n=256) and a year later (T2; n=230). Toddlers' attention and negative emotionality were reported by mothers and non-parental caregivers and rated globally by observers. Toddlers' focused attention also was observed during two mother,child interactions and an independent play task. Measures of maternal emotional support and control were obtained via self-report and observation. Some contemporaneous relations among indices of toddlers' attention were obtained, particularly for observed measures. Moreover, all measures of attention demonstrated stability across time. Negative emotionality was negatively related to toddlers' observed attention at both ages, whereas maternal praise had positive concurrent associations. Maternal control was negatively related to observed attention at T2 and also predicted longitudinally, but only for children who initially had low or moderate attention. The findings suggest that individual differences in focused attention evidence stability early in life but can be influenced by adult socialization. Copyright © 2008 John Wiley & Sons, Ltd. [source] Population-based controlled study of social support, self-perceived stress, activity and work issues, and access to health care in inflammatory bowel diseaseINFLAMMATORY BOWEL DISEASES, Issue 4 2008Linda Rogala RN Abstract Background: The Manitoba IBD Cohort Study is a longitudinal, population-based study of multiple determinants of health outcomes in persons with inflammatory bowel disease (IBD) diagnosed within 7 years at enrollment. In this cross-sectional substudy we compared IBD participants' levels of social support, self-perceived stress, disability, and access to healthcare with those of a matched community sample. Methods: IBD participants (n = 388) were interviewed using the Canadian Community Health Surveys (CCHS) 1.1 and 1.2 to assess psychosocial variables. The national CCHS data were accessed to extract a community comparison group, matched on age, sex, and geographic residence. Results: Compared to the community sample, IBD participants received more tangible, affective, or emotional support in the past year and were more likely to have experienced a positive social interaction. Those with IBD were as likely to be employed as those in the community sample, although they reported greater rates of reduced activity and days missed. Work was not identified as a significant source of stress, but physical health was more likely to be identified as a main stressor by those with active IBD compared to the non-IBD sample. Individuals with IBD were twice as likely to report unmet healthcare needs than the community sample; however, there was agreement across both groups regarding common barriers, including long waits and availability. Conclusions: While the disease may contribute to greater interference with work quality and daily activities, IBD patients have similar levels of stress and appear to have enhanced social supports relative to those in the community without IBD. (Inflamm Bowel Dis 2008) [source] Influence of social network characteristics on cognition and functional status with agingINTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY, Issue 9 2008Ariel Frank Green Abstract Objective To determine whether more frequent engagement in larger social networks, and more emotional support protect against cognitive and functional decline with aging. Methods We examined the influence of social networks on cognition and instrumental activities of daily living (IADLs) over a median interval of 10.9 years. Data were from the Baltimore follow-up of the Epidemiologic Catchment Area (ECA) study, a community-based sample of adults in eastern Baltimore. Eight hundred and seventy-four participants completed cognitive testing at both the third and fourth study waves (1993,1996 and 2003,2004) on the Mini-Mental State Examination (MMSE) and a delayed word recall task. Functional status at both waves was self-reported on the Lawton-Brody IADL scale. Social network characteristics, assessed at the third study wave, included network size, frequency of contact, and emotional support. Results In cross-sectional analyses at wave 3, larger networks were associated with higher MMSE and better delayed recall scores. This association persisted after adjustment for covariates. More emotional support was associated with better functional status, before and after adjustment. By contrast, social networks were not longitudinally associated with cognitive change, with two counter-intuitive exceptions: more frequent contact and more emotional support were associated with worse delayed recall and IADL scores after adjustment. Conclusions There was no evidence of a longitudinal association between social networks and cognition or IADLs, although a clear cross-sectional association exists. Together, these findings suggest the emergence of social isolation in individuals declining in cognition and functioning, rather than a protective effect of social networks. Copyright © 2008 John Wiley & Sons, Ltd. [source] Using NIC to Describe the Role of the Nurse PractitionerINTERNATIONAL JOURNAL OF NURSING TERMINOLOGIES AND CLASSIFICATION, Issue 2003Cindy S. Haugsdal PURPOSE To have nurse practitioners (NPs) identify the 20 most prevalent NIC interventions describing their nursing practice; to determine if the NIC is applicable to the NP role. METHODS The study used a descriptive survey design. NPs with prescriptive privileges in the state of Minnesota received a cover letter and survey that included a description of NIC and a list of the 486 intervention labels and their definitions from the NIC (3rd ed.). Each participant was asked to identify all interventions performed at least once per month in their practice and to provide basic demographic data, including identification of NP specialty. FINDINGS A total of 1,190 surveys were mailed with a return rate of 37%. NPs' average age was 45 years; the average number of years of NP practice was 9. Employment in a clinic represented the work setting of 72% of respondents followed by hospital practice (11%) and long-term care (10%). Specialty (certified) areas were family practice (27%), pediatrics (21%), adult (19%), women's health (16%), geriatrics (11%), psychiatric (5%), and oncology (1%). The educational level was primarily master's degree (73%). NPs identified an average of 120 interventions they performed at least once per month. These interventions reflected areas of patient education and support, as well as documentation and physician collaboration. The 20 most frequently selected interventions were reported by 71%, 90% of respondents. Four core interventions ,"documentation,""telephone consultation,""teaching: prescribed medication," and "emotional support", were used at least once per month by all specialties. DISCUSSION The level of consistency (70%) among responses validates the strong foundation that professional nursing, as described by NIC, provides NPs in their role. Four core interventions and the remaining 16 most frequently selected interventions that are more specific to each specialty practice indicates that NIC is comprehensive enough to meet the needs of a variety of NP practices. CONCLUSIONS NIC encompasses key areas of interventions (health screening, treatment and management, health promotion and education, psychosocial support, indirect activities) central to the role of NPs, but qualitative comments described the need for more language within NIC to characterize the NP role related to the prescribing of medications and treatments. Some respondents found the definitions to be unclear as to whether they were performing or ordering/prescribing the intervention. This lack of clarity could be addressed by further development of the NIC definitions and activities so the advanced role of the NP is more fully described. Development of documentation systems using the core interventions identified by the various NP specialties is needed. Using standardized nursing language for documentation will enable NPs to build clinical databases that reflect and describe the role. Future research needs to be focused by NP specialty and to go beyond the NIC definition and include analysis at the activity level. [source] Jordanian nurses' job stressors and social supportINTERNATIONAL NURSING REVIEW, Issue 1 2008S.H. Hamaideh rn Purpose:, This study describes stressors of Jordanian nurses and the social support they received to decrease the influence of these stressors. The relationships between the two concepts, and each with the sample's demographics were assessed. Predictors of nurses' stressors as well as social supportive behaviours were also studied. Methods:, A descriptive correlational research design was used. The Nursing Stress Scale and the Inventory of Social Supportive Behaviours were used to collect data from a convenience sample of 464 Jordanian nurses who were working in 13 Jordanian hospitals. Results:, Workload and dealing with issues of death and dying were the most prevalent stressors among Jordanian nurses. Emotional support was the most supportive social behaviour Jordanian nurses reported that they usually receive. Significant correlations were found between nurses' stressors and social supportive behaviours, as well as between nurses' stressors and shift worked, level of education, and model of nursing care provision. Additionally, significant correlations were found between social supportive behaviours and commitment for work and units' decision-making style. Shift worked, nurses' educational level and model of nursing care provision were the best predictors of the nurses' stressors. Shift worked, model of the nursing care provision, marital status and unit's organizational structure were the best predictors of the social supportive behaviour. Conclusions:, Nursing interventions are needed to decrease nurses' stressors; these will help nurses to perform safely their jobs. Various types of social support are needed, particularly emotional support. [source] Correlates of mood disturbance in women with breast cancer: patterns over timeJOURNAL OF ADVANCED NURSING, Issue 6 2008Diane Von Ah Abstract Title.,Correlates of mood disturbance in women with breast cancer: patterns over time Aim., This study examined factors associated with mood disturbance prior to, during and after adjuvant therapy. Background., Breast cancer is the most common cancer in women worldwide. Mood disturbance affects between 20% and 30% of women with breast cancer and is associated with other debilitating symptoms. However, factors associated with mood disturbance across the breast cancer diagnosis,treatment trajectory are not clearly understood. Method., A stress-coping framework guided this longitudinal study. A convenience sample of 49 American women with newly diagnosed breast cancer aged 37,77 years completed questionnaires assessing age, optimism, disease stage, type of adjuvant therapy, lymph node status, emotional support, aid (tangible) support, perceived stress and mood disturbance. Data were collected over an 18-month period in 2002,2003 at three time points: prior to, during and after adjuvant therapy. Descriptive statistics, Pearson's correlation and multiple regression were used. Findings., At all three time points, higher stress was significantly related to greater mood disturbance. Perceived stress mediated the relationship between (1) emotional support and mood disturbance prior to and after adjuvant therapy and between (2) aid support and mood disturbance during adjuvant therapy. In addition, the type of support that was most important to mood disturbance varied over time. Emotional support was related to reduced mood disturbance prior to and after adjuvant therapy, whereas aid support was most important during adjuvant therapy. Conclusions., Nurses may use this information to develop interventions that bolster appropriate types of support to reduce stress and ultimately lower mood disturbance. Further research across cultures is needed. [source] Support for teenage mothers: a qualitative study into the views of women about the support they received as teenage mothersJOURNAL OF ADVANCED NURSING, Issue 1 2001Ank De Jonge MSc HBOV RM RGNArticle first published online: 7 JUL 200 Support for teenage mothers: a qualitative study into the views of women about the support they received as teenage mothers Aim of the study.,To gain insight into the support teenage mothers received during pregnancy, birth and their child's pre-school years and young women's perceptions of the usefulness of a support group for teenage mothers. Background.,Most qualitative studies have focused on teenage mothers around the time of the birth of their first child. For this study, women were recruited several years after the birth (median 8·5 years), so that they would have had time to reflect on the support they had received. Design.,The qualitative method of semi-structured interviews was chosen to obtain in-depth information and to allow teenage mothers' own views to be heard. Ten individual interviews and one paired interview were undertaken. Findings.,Recruitment was difficult because taking part in research was not a priority for many of the women. The study confirmed the strong link between deprivation and teenage pregnancy found in other studies, and suggested that mental health problems in teenage mothers may be more difficult to detect. Teenage women need more information on mental health and on services available to them. The fear, expressed by some of the women in this study, of becoming different from other women in their social network should be considered by health workers when establishing intervention programmes. Conclusions.,Professional bodies of health workers should lobby government to provide a minimum standard of living and sufficient child-care to combat deprivation. Former teenage mothers should be involved in the recruitment, planning and implementation stages of research and interventions. Health professionals should be aware that mental health problems in teenage mothers may be particularly difficult to detect. Key community health workers or a support group may provide information on services, mental health and education facilities available that would benefit teenage mothers. A support group may also give emotional support. [source] The needs of family caregivers of frail elders during the transition from hospital to home: a Taiwanese sampleJOURNAL OF ADVANCED NURSING, Issue 3 2000Yea-Ing Lotus Shyu RN PhD The needs of family caregivers of frail elders during the transition from hospital to home: a Taiwanese sample This study explored the needs of family caregivers during the transition from hospital to home. Data from 37 face-to-face interviews with 16 caregivers before discharge and at 2 weeks and 1 month after discharge were subjected to constant comparative analysis. Findings revealed changes in family caregivers' needs during the discharge transition. While preparing to take caregiving responsibility, caregivers reported a need for various types of information. After the discharge, but before home caregiving settled into a pattern, they needed help with caregiving practices. After reaching a pattern for providing family care, caregivers frequently reported needs for continuous emotional support. These findings provide a basis for transitional care services such as discharge planning and home health care services. [source] Do Palliative Consultations Improve Patient Outcomes?JOURNAL OF AMERICAN GERIATRICS SOCIETY, Issue 4 2008David Casarett MD OBJECTIVES: To determine whether inpatient palliative consultation services improve outcomes of care. DESIGN: Retrospective telephone surveys conducted with family members of veterans who received inpatient or outpatient care from a Department of Veterans Affairs (VA) medical facility in the last month of life. SETTING: Five VA Medical Centers or their affiliated nursing homes and outpatient clinics. PARTICIPANTS: Veterans had received inpatient or outpatient care from a participating VA in the last month of life. One family member completed each survey. MEASUREMENTS: The telephone survey assessed nine aspects of the care the patient received in his or her last month of life: the patient's well-being and dignity (4 items), adequacy of communication (5 items), respect for treatment preferences (2 items), emotional and spiritual support (3 items), management of symptoms (4 items), access to the inpatient facility of choice (1 item), care around the time of death (6 items), access to home care services (4 items), and access to benefits and services after the patient's death (3 items). RESULTS: Interviews were completed with 524 respondents. In a multivariable linear regression model, after adjusting for the likelihood of receiving a palliative consultation (propensity score), palliative care patients had higher overall scores: 65 (95% confidence interval (CI)=62,66) versus 54 (95% CI=51,56; P<.001) and higher scores for almost all domains. Earlier consultations were independently associated with better overall scores (,=0.003; P=.006), a difference that was attributable primarily to improvements in communication and emotional support. CONCLUSION: Palliative consultations improve outcomes of care, and earlier consultations may confer additional benefit. [source] The Disclosure Process and its Impact on South Asian Families with a Child with Severe Intellectual DisabilitiesJOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, Issue 3 2003Chris Hatton Background, Although several research studies have investigated parental experiences of the disclosure process in White families with a child with severe disabilities, little work has focused on the experiences of South Asian families. Materials and methods, This study aimed to provide a rich picture of the disclosure experiences of South Asian parents of a child with severe intellectual disabilities, using semi-structured qualitative interviews with 26 parents over two time points, and structured quantitative interviews with 136 parents. Results, Parents reported variable experiences of the disclosure process, with many parents experiencing disclosure in the wrong language for them and most parents reporting little post-disclosure support. Parents identified good practice in disclosure as prompt disclosure in the appropriate language, with the partner present (where possible), with emotional support as part of the process, with clear and practical information, and linked to post-disclosure support from a keyworker. Conclusions, Good practice in disclosure was also associated with parental understanding of their child, and parents being more likely to mobilize informal and formal supports. The implications of these findings are discussed. [source] The fatigue experiences of older Taiwanese women with breast cancerJOURNAL OF CLINICAL NURSING, Issue 5-6 2010Sung-Ling Tsai Aims and objectives., This study explored the fatigue experiences in older Taiwanese women with breast cancer. Background., Cancer is a common disease for older people, and breast cancer ranks second in occurrence among all cancers. Fatigue is the most frequently seen symptom, with more than 90% of cancer patients having such experiences. Fatigue may lead to functional dependence, affecting the care and quality of life for this older population. Design., A qualitative design was used in this study. Methods., In-depth interviews were conducted with participants being treated at the oncology outpatient department in a teaching hospital in northern Taiwan. Data were collected from November 2006,March 2007. Results., The study included 15 women, aged 65,82, with breast cancer. Analysis of the interviews revealed three themes: factors related to fatigue, interpretation of fatigue and ways to deal with fatigue. The factors related to fatigue arose from treatment, symptom distress and the impact of their emotions. Participants interpreted the fatigue as an inevitable normal reaction, and they were embarrassed to share its occurrence with others. Although fatigue made participants suffer, they found the ways to decrease the feeling of fatigue using psychological adjustments, practical changes and support systems. Conclusions., Facing the multilayered influences from treatments and ageing, older women with breast cancer considered fatigue as a physical and psychological expression. By raising the awareness of fatigue, nurses can help this older population manage or relieve fatigue by controlling symptoms, providing emotional support and making related resources available. Relevance to clinical practice., The results of this study can enhance the sensitivity and evaluation abilities of nurses in dealing with the cancer-related fatigue in older women with breast cancer. [source] The role of specialist and general nurses working with people with multiple sclerosisJOURNAL OF CLINICAL NURSING, Issue 18 2009Alison While Aim., To describe the perceived role of nurses and other carers of people with multiple sclerosis from the perspective of different stakeholders (people with multiple sclerosis, non-specialist nurses, specialist nurses and other health care professionals). Background., Multiple sclerosis is one of the commonest causes of disability in young adults. People with multiple sclerosis require supportive care during the disease trajectory. The role of different health and social care providers has not been reported previously. Design., Survey. Method., Questionnaire data collected in 2002 during the first phase of scale development (health professionals n = 459; people with multiple sclerosis n = 65; total response rate 59·4%). The data were reanalysed to compare responses across sample groups. Results., There was consensus that neurologists and specialist nurses were the most appropriate professionals in the provision of specialist care with specialist nurses also being identified as key providers of emotional support. However, there were also significant differences in nominations reflecting the different perspectives of the stakeholder groups and a self-report bias. Each stakeholder group frequently emphasised their own perceived contribution to care. The different perspective of people with multiple sclerosis was also noteworthy with their greater emphasis on social care and lay support. Conclusions., The findings indicate a dissonance in the views of different stakeholders within the care system. The division of labour associated with nursing care requires further exploration. The contrasting paradigms of health care professionals and people with multiple sclerosis regarding models of disability were highlighted. Relevance to clinical practice., Multiple sclerosis, like other chronic illnesses, requires substantial nursing care. There is a growing number of specialist nurses in the workforce, however, little is known how their role interfaces with other nurses. [source] Rheumatoid arthritis patient education: RA patients' experienceJOURNAL OF CLINICAL NURSING, Issue 14 2009Paula Mäkeläinen Aim and objective., The purpose of this paper is to describe the content of patient education as portrayed and evaluated by rheumatoid arthritis (RA) patients. Background., Rheumatology nurses have an important role in educating and supporting RA patients. However, there is a lack of knowledge of the RA patients' own perspective of patient education. Design., Survey. Method., Data for this study were collected from 173 RA patients from 11 hospitals and 23 health centers using open-ended questions. Fifty-seven percent (57%) of the patients described the content of patient education and eighty-one percent (81%) evaluated it expressing their experience and satisfaction with it. Data were analysed using descriptive and non-parametric statistical tests. Results., Rheumatology nurses mostly gave their RA patients information about how to use the anti-rheumatic drugs prescribed to them (26%). About half (51%) of the patients were satisfied with patient education. However, every fourth patient (24%) was not satisfied, the main reason for the dissatisfaction being that nurses did not focus on the patient's emotional support. The patients of over 57 years of age and those who had suffered from RA for over five years were more satisfied with their education than the others. Conclusions., It is important that rheumatology nurses, besides passing on medical treatment-related information, concentrate on RA patients' emotional well-being. Relevance to clinical practice., The results provide a useful insight into RA patient education. Nurses should avoid merely passing on information in a routine workmanlike way. It is important that they take time to discuss their patients' feelings and worries especially with newly diagnosed patients. RA patient education should balance patients' information needs with their need for emotional support. [source] The impact of role discrepancy on nurses' intention to quit their jobsJOURNAL OF CLINICAL NURSING, Issue 9 2006BNurs, DipNurs, MNurs, Miyuki Takase RN Aims and objective., The purpose of this study was to investigate the impact of role discrepancy on nurses' intention to quit their jobs. Background., Nurses experience role discrepancy, which refers to incompatibility between the roles nurses desire and expect to take, and the roles they actually engage in at work. However, there is a paucity of information as to how this role discrepancy affects nurses' intention to quit their jobs. Design., A correlational design was used to investigate the impact of role discrepancy on nurses' intention to quit their jobs. Methods., A total of 346 Australian nurses participated in this study by completing questionnaires. The results were analysed by t -test, polynomial regression and response surface analysis. Results., Nurses tended to experience role discrepancy, in particular, in decision making with hospital policies and provision of patient education. The overall results show that this role discrepancy contributes to nurses' intention to quit their jobs. Nurses' intention to quit their jobs also increased when they had a low desire to engage in nursing roles and when they only performed a few roles. When specific dimensions of nursing roles were examined, a role discrepancy in the use of nursing skills, such as participation in decision making and providing patient education and emotional support, had little impact on their turnover intention. On the contrary, a role discrepancy in task delegation practice showed a significant association with nurses' intention to leave their jobs. Conclusions., Role discrepancy has been experienced by many nurses, and this discrepancy partially contributes to nurses' intention to quit their jobs. Relevance to clinical practice., To reduce nursing turnover, it is important to create a work environment where nurses are inspired to engage in various nursing roles and their work desires are reinforced by existing work opportunities. [source] Relationships between partner's support during labour and maternal outcomesJOURNAL OF CLINICAL NURSING, Issue 2 2000MPhil, Wan Yim Ip BN ,,The objective of this study was to measure the relationship between women's ratings of partners' participation during labour and maternal outcomes as measured by anxiety level, pain perception, dosage of pain-relieving drug used and length of labour. ,,A convenience sample of 45 primigravid women was selected from the postpartum unit of a public hospital in Hong Kong. They were all first-time Chinese mothers, aged 18 or over, who had attended antenatal classes and had their partners present during labour. ,,The State Scale of the State-Trait Anxiety Inventory was used to measure maternal anxiety during labour. Labour pain was measured by the Visual Analogue Scale. A series of scales were developed to measure partners' participation during labour. ,,Women's ratings of partners' practical support were significantly lower than their ratings of partners' emotional support. There were no significant associations between level of emotional support and maternal outcome measures. However, perceived practical support was positively related to the dosage of pain-relieving drug used and total length of labour. Positive relationships between the duration of partners' presence and women's ratings of perceived support provided by partners during labour were also found. [source] Social support and risk of sexual assault revictimization,JOURNAL OF COMMUNITY PSYCHOLOGY, Issue 1 2009Gillian E. Mason Limited research on revictimization has examined the role of social support, which is known to affect sexual assault survivors' psychological recovery. Measuring social support also provides a more ecological approach to understanding revictimization, as it assesses the possible role of those in the survivors' environment. The current study examined how social support and disclosure experiences of 625 community-based survivors related to their revictimization status over a 12-month period. Results showed differences between revictimized and nonrevictimized survivors in terms of who they disclosed to about their assault. In addition, revictimized survivors received less informational and emotional support and more blaming reactions. Implications for future research regarding using an ecological approach to better understand revictimization risk are discussed. © 2008 Wiley Periodicals, Inc. [source] Parental perceptions of contributions of school and neighborhood to children's psychological wellnessJOURNAL OF COMMUNITY PSYCHOLOGY, Issue 3 2006Sylvie Jutras This study examined parents' perceptions of how school and neighborhood contribute to the psychological wellness of their 6- to 12-year-old children. Content analysis of 260 interviews explored parents' perception and identified the key aspects of school and neighborhood. At school, two assets stood out: emotional support and a supportive learning milieu. Qualities that parents valued about the neighborhood included child-friendliness, environmental amenities, and the presence of cordial and supportive neighbors. Parents living in disadvantaged neighborhoods differed on many points in their perceptions from parents living in wealthier neighborhoods, reflecting disparities in the environments in which they live and raise their children. © 2006 Wiley Periodicals, Inc. [source] | ||||||||||||||||||||||||||||||||||||||||