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Day-to-day Life (day-to-day + life)
Selected AbstractsExperience of parents with head and neck cancer who are caring for young childrenJOURNAL OF ADVANCED NURSING, Issue 6 2010Cherith J. Semple semple c.j. & mccance t. (2010) Experience of parents with head and neck cancer who are caring for young children. Journal of Advanced Nursing,66(6), 1280,1290. Abstract Title.,Experience of parents with head and neck cancer who are caring for young children. Aim., This paper is a report of a study exploring the experience and support needs of parents with head and neck cancer, who are also caring for their young children. Background., The incidence of head and neck cancer is steadily rising in the younger age groups (under 50 years). As a direct consequence, more parents of young children are being diagnosed with this cancer. Methods., Using a qualitative descriptive design, 12 patients with young children under the age of 16 were interviewed during 2008. The data were analysed using cognitive mapping. Findings., At diagnosis, parents experienced the fear of missing milestones in the life of their children and fear of telling the children about their diagnosis. During treatment, parents' inevitable stays in hospital led to separation from the children and the need to prepare their children for the first hospital visit. Parents experienced many debilitating effects of treatment, which had an impact on family activities, especially those that involved eating. There was often changing roles within the family. After treatment, the experience of living with cancer for parents resulted in the desire to get back to day-to-day life. Parents had an increased appreciation of life but were also living with uncertainties. The most important support networks for parents were their spouse, family and friends. Conclusion., Oncology nurses are in an excellent position to offer support and guidance to parents with cancer who have children, and should encourage them to explore with the family the best way of managing role change during treatment. [source] Using photographs and narratives to contextualise and map the experience of caring for a person with dementiaJOURNAL OF NURSING AND HEALTHCARE OF CHRONIC ILLNE SS: AN INTERNATIONAL INTERDISCIPLINARY JOURNAL, Issue 3 2009PGCLT (HE), Penny Hibberd RGN Aim., To capture the meaning and context of how carers adapt and develop their relationships throughout their caring role. Background., Family carers play a pivotal role in supporting and caring for a person living with dementia at home. To date, the majority of social research on carers has focussed upon the stress and burden that such demands evoke, and limited attention has been paid to locating the carer's own construction of their role with a relationship-centred approach. This paper attempts to build on this emerging understanding. Design., A participative, qualitative study using photographs and supportive narratives to contextualise and map carer's experiences of caring for a person with dementia. The study was conducted in one area of South East England, UK with all necessary ethical permission to conduct the study obtained prior to data collection. Method., Data was obtained between May,June 2008 with nine carers recruited from a not for profit organisation based in the UK. Photographs were taken by participants using a 27-print disposable camera with supporting written narratives provided on six photographs that participants selected to best represent their caring role and relationship. These photographs and supporting text were then shared with other participants in a focus group. Through this process, participants were helped to sort and group the data into narrative themes. Results., From this collaborative process, the group identified four types of caring relationships, these were: recognising (1); transforming (2); stabilising (3); and ,moving on' (4). Photographs and the supporting narratives were used to illustrate each type of relationship that helped to give meaning and shape to everyday life. Conclusion., The four types of caring relationships help nurses and other service providers to understand how carers of people with dementia construct and manage their day-to-day life. Recognition of a carer's personhood needs to be acknowledged in order to promote and support their role throughout the caring trajectory. Relevance to clinical practice., Recognition of the knowledge and skills held by carers of people with dementia can help inform professional decision-making and provide a platform for practice intervention. [source] The psychosocial functioning of children and spouses of adults with ADHDTHE JOURNAL OF CHILD PSYCHOLOGY AND PSYCHIATRY AND ALLIED DISCIPLINES, Issue 4 2003Klaus Minde Background:, It is unclear what the impact of parental ADHD is on the day-to-day life of the rest of the family and how it contributes to the intergenerational transmission of this disorder. Method:, The psychosocial functioning of 23 spouses and 63 children of 33 families with an ADHD parent and 20 spouses and 40 children of 26 comparison families was examined. Both adults and their spouses were assessed for lifetime and current Axis I and Axis II diagnoses, present general psychiatric symptoms and their marital relationships. Children were screened for ADHD and other problems, using the C-DISC, CBLC, TRF and the Social Adjustment Inventory. Results:, Children with an ADHD parent had higher rates of psychopathology than those from comparison families. Children with ADHD had more co-morbidities than non-ADHD children. Family and marital functions were impaired in ADHD families regardless of the gender of the affected parent. Children without ADHD from families with one psychiatrically healthy parent did well while the behaviour of children with ADHD was always poor and not associated with parental mental health. Conclusion:, The results underscore the strong genetic contribution to ADHD and the need to carefully assess the non-ADHD parent as they seem to influence the well-being of non-ADHD children in families with an ADHD parent. [source] Chronic pain in South Australia , population levels that interfere extremely with activities of daily livingAUSTRALIAN AND NEW ZEALAND JOURNAL OF PUBLIC HEALTH, Issue 3 2010David C. Currow Abstract Objective: The prevalence of chronic pain in Australia has only been previously estimated for the state of New South Wales. The aim of this study was to focus estimates on pain severe enough to interfere markedly with daily function irrespective of contact with health services in another region, South Australia. Methods: A whole of population random face-to-face survey method (n=2,973) was used, directly standardised against the whole population for age, gender, country of birth and rurality. Respondents were asked about chronic pain and the degree to which it interfered with daily activities. Results: The prevalence of chronic pain was 17.9%, and pain that interfered extremely with activity 5.0%. Chronic pain was associated with older age, living alone, lower income, not being in full-time work and lower educational levels in bivariate analyses, however in multifactor analyses the only significant associations were not currently working (p<0.001) and lower levels of educational achievement (p=0.042). Pain that interfered extremely with activity in multifactor analysis was associated with work status where the odds ratio for work-related injury compared to those in full time work was 19.3 (95% CI 7.30-51.3; p<0.001). Conclusions: This study highlights the high levels of pain with extreme effects on day-to-day life (one in 20 people), the complex inter-relationships of the factors (educational achievement, work status) associated with chronic pain and the impacts that these factors have on the people experiencing such disabling pain in the long-term. [source] NIKE: a new clinical tool for establishing levels of indications for cataract surgeryACTA OPHTHALMOLOGICA, Issue 4 2006Mats Lundström Abstract. Purpose:, The purpose of this study was to construct a new clinical tool for establishing levels of indications for cataract surgery, and to validate this tool. Methods:, Teams from nine eye clinics reached an agreement about the need to develop a clinical tool for setting levels of indications for cataract surgery and about the items that should be included in the tool. The tool was to be called ,NIKE' (Nationell Indikationsmodell för Kataraktextraktion). The Canadian Cataract Priority Criteria Tool served as a model for the NIKE tool, which was modified for Swedish conditions. Items included in the tool were visual acuity of both eyes, patients' perceived difficulties in day-to-day life, cataract symptoms, the ability to live independently, and medical/ophthalmic reasons for surgery. The tool was validated and tested in 343 cataract surgery patients. Validity, stability and reliability were tested and the outcome of surgery was studied in relation to the indication setting. Results:, Four indication groups (IGs) were suggested. The group with the greatest indications for surgery was named group 1 and that with the lowest, group 4. Validity was proved to be good. Surgery had the greatest impact on the group with the highest indications for surgery. Test-retest reliability test and interexaminer tests of indication settings showed statistically significant intraclass correlations (intraclass correlation coefficients [ICCs] 0.526 and 0.923, respectively). Conclusions:, A new clinical tool for indication setting in cataract surgery is presented. This tool, the NIKE, takes into account both visual acuity and the patient's perceived problems in day-to-day life because of cataract. The tool seems to be stable and reliable and neutral towards different examiners. [source] (En)Gendering Responsibilities: Experiences of Parenting a ,Young Offender'THE HOWARD JOURNAL OF CRIMINAL JUSTICE, Issue 4 2009AMANDA HOLT Abstract: This article discusses how parenting a ,young offender' involves specific additional responsibilities for parents who are already under scrutiny for apparently not taking their parenting responsibilities seriously. With reference to empirical data, three specific parental tasks are considered: managing the family's involvement in the youth justice system, waiting on ,standby' for police and schools, and reporting the child's offences to the police. In doing so, this article highlights the ways in which gender is implicated, and performs a regulatory function, in the day-to-day lives of mothers and fathers who are parenting a ,troublesome' child. [source] | ||||||||||