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Caregiving Experience (caregiving + experience)
Selected AbstractsSeizing possibilities for positive family caregiving in nursing homesJOURNAL OF CLINICAL NURSING, Issue 8 2007Ursula Kellett PhD Aims., This paper explores the ways family members reconstruct meaning through seizing possibilities for positive caregiving in nursing homes. Background., The importance of the ability of family caregivers to adapt and accommodate has been well documented in international family caregiving research. Through engagement in caregiving activities, families learn to modify, adapt and accommodate to changes in their situation and relationships. The support family caregivers experience in learning to accommodate change is crucial in enabling them to reconstruct positive aspects of caregiving in a long-term aged care context. Method., In this study, a hermeneutic phenomenological approach was adopted informed by the philosophical world views of Heidegger and Gadamer. Data collected by in-depth interviews and participant observations, from a purposeful sample of 14 family caregivers, underwent hermeneutic analysis. Results., Five shared meanings associated with seizing possibilities for positive caregiving were revealed: accommodating new and different ways of caring; feeling a part of the nursing home community; seeing the whole picture; learning to care in stress-reducing ways and learning to seize possibilities for self. Conclusion., This paper illustrates how families, through caregiving experience in nursing homes, learn to become active managers, negotiating, accommodating and redeveloping a sense of future viewed with hope, strength and positive anticipation. Relevance to clinical practice., By highlighting what is attributed significance by families, a critical examination of the difficult issues which obstruct the development of meaningful partnerships among nurses, family and their relatives is facilitated. In particular, an examination of tensions at an ideological level supports the need for future research to focus its efforts on examining the ways of implementing nursing care that facilitates partnerships that incorporate and build upon positive and equal relations among staff, families and residents in the context of the nursing home setting. [source] Needs assessment of family caregivers of cancer survivors: three cohorts comparison,PSYCHO-ONCOLOGY, Issue 6 2010Youngmee Kim Abstract Purpose/Background: Caregivers' quality of life (QOL) may be maximized when the caregivers' needs in the context of cancer care are met. Therefore, determining what needs are not being satisfied for family caregivers should be the first step in the development of programs designed to enhance caregivers' QOL. Method: The 28-item Needs Assessment of Family Caregivers-Cancer (NAFC-C) scale was developed and validated with caregivers at three different survivorship phases: at 2 months (n=162), 2 years (n=896), and 5 years (n=608) post-diagnosis. Results: The NAFC-C helped to identify caregivers whose needs were less likely to be met, based on their age and ethnicity. Furthermore, the extent to which caregivers' psychosocial needs were not being met was a consistent and strong predictor of poor mental health across all phases of survivorship, beyond the effects of a host of demographic characteristics. Conclusion: Findings suggest that interventions designed to help caregivers manage their own emotional distress as well as the survivors' distress, find meaning in the cancer caregiving experience, and foster supportive familial relationship will benefit caregivers by improving their QOL, not only during the time of diagnosis and treatment but years after. Copyright © 2009 John Wiley & Sons, Ltd. [source] Family Caregivers' Experiences with Community Services: A Qualitative AnalysisPUBLIC HEALTH NURSING, Issue 5 2003Betty Wehtje Winslow Ph.D. Abstract Researchers of family caregiving have presented mixed results in evaluating the effectiveness of community services in reducing family caregiver stress and have indicated that many caregivers use limited services or access services late in their caregiving experience. The purpose of this study was to describe the experience of the use of community services, including benefits and barriers, by family caregivers of relatives with Alzheimer's disease or a related disorder. Community services included assistance with caregiving or related tasks and educational or emotional support that was provided by health professionals or community service providers. In this qualitative descriptive study, a convenience sample of 21 family caregivers was interviewed. Open-ended questions were used to explore the caregivers' experiences with community services. Transcribed data were analyzed using qualitative content-analysis techniques. Results indicated that family caregivers received benefits of renewal, sense of community, and new knowledge and believed that their patient benefited from the services. Barriers to service use included care receiver resistance, reluctance of the caregiver, hassles for the caregiver, concerns over quality, and concerns over finances. These findings provide direction for community nurses and other health professionals in targeting interventions that will meet the expressed needs of caregivers. [source] Evolution of the caregiving experience in the initial 2 years following strokeRESEARCH IN NURSING & HEALTH, Issue 3 2003Carole L. White Abstract Relationships between stroke survivor and family caregiver factors and the caregiver's health-related quality of life (HRQL) and overall quality of life (QoL) were examined in 97 dyads during the first and second years after stroke. Compared to age- and sex-matched population norms, caregivers scored significantly lower on the mental subscales of HRQL, and differences were greater for women than for men. Caregiver characteristics (older age, less burden, and fewer physical symptoms) were associated with better HRQL (mental summary scale) in the first year, with similar findings in the second year. Moderate stroke survivor physical impairment and caregiver characteristics (younger age and better HRQL) were associated with better QoL in the first year. During the second year poorer caregiver physical and mental health and caring for a stroke survivor with communication difficulties were associated with diminished QoL. © 2003 Wiley Periodicals, Inc. Res Nurs Health 26: 177,189, 2003 [source] Early discharge following abdominal aortic aneurysm repair: Impact on patients and caregiversRESEARCH IN NURSING & HEALTH, Issue 5 2002Mildred A. Jones Abstract Although early discharge is common place, little is known about its impact after abdominal aortic aneurysm (AAA) surgery. We sought to prospectively describe patient outcomes and caregiving experience after early discharge following elective AAA repair using a standard or endovascular grafting system (EGS) procedure. Fifty-one patients (Standard, n=25; EGS, n=26) completed questionnaires on symptoms and health-related quality of life (HRQoL) while hospitalized and 1, 4, and 8 weeks after discharge. Data were also obtained from caregivers. HRQoL decreased at Week 1 in both groups but returned to near baseline by Week 8. Standard AAA patients experienced more symptoms and activity limitations, but these were concentrated in Week 1. Most caregivers were positive about caregiving and required no additional resources. Findings suggest that most patients who undergo early discharge following elective AAA surgery experience few problems. Those problems that occur concentrate in the week following discharge, suggesting the need for closer monitoring at this time. © 2002 Wiley Periodicals, Inc. Res Nurs Health 25:345,356, 2002 [source] Family Caregivers' Patterns of Positive and Negative Affect,FAMILY RELATIONS, Issue 1 2007Suzanne M. Robertson Abstract: Stressful and positive family caregiving experiences were examined as predictors of caregivers' patterns of positive and negative affect in a sample of families providing care for a relative with dementia (N= 234). Four affect pattern groups were identified: (a) Well Adjusted (i.e., high positive affect, low negative affect); (b) Ambiguous (i.e., low on both positive and negative affect); (c) Intense (i.e., high on both positive and negative affect); and (d) Distressed (i.e., high negative affect, low positive affect). A multivariate model that included demographic characteristics and indicators of stressful and positive experiences of caregiving yielded 2 significant discriminant functions that served to classify caregivers correctly into their known affect groups. Implications for improving intervention efforts targeting family caregivers are discussed. [source] Caregiver depression predicts early discontinuation of care for disabled elderly at homePSYCHIATRY AND CLINICAL NEUROSCIENCES, Issue 4 2001Yumiko Arai MD Abstract This longitudinal study investigates the caregiving experiences among Japanese caregivers who provided informal care at home for disabled elderly between 1998 and 1999. Forty-seven caregivers of the impaired elderly continued caregiving at home in Matsuyama Town, a rural area of northern Japan, while 18 caregivers discontinued it. The mean score of the Center for Epidemiologic Studies Depression Scale in 1998 among those who gave up caregiving was significantly higher than that of those who continued caregiving, indicating that depression predicts early discontinuation of care in the home. This is one of the few studies in Japan to suggest that initial caregiver depression is a factor in the decision to terminate care for the disabled elderly at home. [source] "Choice" in Filial Care Work: Moving beyond a DichotomyCANADIAN REVIEW OF SOCIOLOGY/REVUE CANADIENNE DE SOCIOLOGIE, Issue 3 2009LAURA M. FUNK Les auteures analysent le concept du «choix» dans le travail des aidants naturels filiaux. Dans la documentation théorique et empirique sur le travail des aidants naturels, une dichotomie entre le «choix» et l'«obligation» est considérée comme une construction sociale. Néanmoins, cette dichotomie ne reflète pas adéquatement les expériences familiales de fourniture de soins; par exemple, le choix et l'obligation ne constituent pas des motivations mutuellement exclusives. Ils sont plutôt «relationnels», «contextuels» et manifestes dans l'interaction entre des macro et des microcontextes. La dichotomie choix-obligation est également idéologique. Sur le plan de la politique morale, elle fait la promotion du déchargement de la responsabilité des gouvernements sur les familles, elle obscurcit la complexité des relations filiales et peut même promouvoir l'ambivalence psychologique. In this paper, we discuss the concept of "choice" in filial care work. A dichotomy between choice and obligation is constructed in theoretical and empirical literature on filial care work. However, this dichotomy does not adequately reflect family caregiving experiences; for instance, choice and obligation are not mutually exclusive motivations. Rather, choice and obligation are "relational" and "contextual" and manifest in the interaction between macro- and micro-contexts. The choice-obligation dichotomy is also ideological. At the moral-political level, it promotes the downloading of responsibility by governments to family, obscures the complexity of filial relationships, and may even promote psychological ambivalence. [source] | |||||||||||||