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Illness Perceptions (illness + perception)

Distribution by Scientific Domains

Medical Sciences	63%

Selected Abstracts

Illness perceptions and quality of life amongst women with pseudotumor cerebri

EUROPEAN JOURNAL OF NEUROLOGY, Issue 8 2009
A. Kesler
Background and purpose:, Pseudotumor cerebri (PTC) is a disorder of increased intracranial pressure without evidence of a space occupying lesion. The purpose of this study was to assess the subjective perception of PTC and its association with stress, anxiety and global quality of life (QOL). Methods:, Fifty-eight women diagnosed with PTC completed questionnaires measuring their subjective appraisal of PTC and specific perceptions of the symptoms, causes, consequences, timeline, controllability and their anxiety, perceived stress, and QOL. Results:, Appraisals of the condition were mostly of loss or threat and those were related to greater anxiety, stress and poorer QOL. Negative perceptions of PTC were related to greater anxiety, stress and poorer QOL. Most of the women attributed their condition to their weight, but adjustment for body mass index ruled out weight as accounting for the findings. Women attributed to the condition symptoms likely to be related to PTC as well as others that seem unrelated. Conclusions:, Our findings underscore the importance of assessing women's subjective perceptions of their condition as a factor related to their levels of anxiety and stress as well as to their QOL. Accurate symptom diagnosis and treatment as well as psychosocial support could assist women who are coping with the burden of this condition and possibly improve their QOL. [source]

Section Editor: Aad Tibben, email: Tibben@lumc.nl: Quality of life and psychological distress in patients with Peutz,Jeghers syndrome

CLINICAL GENETICS, Issue 3 2010
MGF Van Lier
van Lier MGF, Mathus-Vliegen EMH, van Leerdam ME, Kuipers EJ, Looman CWN, Wagner A, Vanheusden K. Quality of life and psychological distress in patients with Peutz,Jeghers syndrome. Little is known about psychological distress and quality of life (QoL) in patients with Peutz,Jeghers syndrome (PJS), a rare hereditary disorder. We aimed to assess QoL and psychological distress in PJS patients compared to the general population, and to evaluate determinants of QoL and psychological distress in a cross-sectional study. PJS patients completed a questionnaire on QoL, psychological distress, and illness perceptions. The questionnaire was returned by 52 patients (85% response rate, 56% females, median age 44.5 years). PJS patients reported similar anxiety (p = 0.57) and depression (p = 0.61) scores as the general population. They reported a lower general health perception (p = 0.003), more limitations due to emotional problems (p = 0.045) and a lower mental well-being (p = 0.036). Strong beliefs in negative consequences of PJS on daily life, a relapsing course of the disease, strong emotional reactions to PJS, and female gender were major determinants for a lower QoL. PJS patients experience a similar level of psychological distress as the general population, but a poorer general health perception, more limitations due to emotional problems, and a poorer mental QoL. Illness perceptions and female gender were major predictors for this lower QoL. These results may help to recognize PJS patients who might benefit from psychological support. [source]

Illness perceptions in depersonalization disorder: Testing an illness attribution model

CLINICAL PSYCHOLOGY AND PSYCHOTHERAPY (AN INTERNATIONAL JOURNAL OF THEORY & PRACTICE), Issue 2 2007
Dawn Baker
Depersonalization disorder (DPD) remains poorly understood and controversial in terms of diagnosis and treatment. Little is known about the cognitive representation of this disorder. In this study, 80 participants with DPD were assessed using the Revised Illness Perception Questionnaire to determine the nature of their perceptions, causal attributions and whether these correlate with levels of depersonalization and affect. Illness perceptions were generally negative; the nature of symptoms was described as mainly psychological but causal attributions were equally divided between psychological and physical. Over half of the sample believed that symptoms were due to ,physical changes in the brain'. A strong illness identity, psychological illness attributions and high levels of depression were associated with greater depersonalization disorder severity. High levels of anxiety were also prevalent but the relationship between anxiety and depersonalization was unclear. The findings offer some support for a cognitive model of understanding depersonalization disorder, namely that attribution processes are linked to perceived symptom severity and a wide range of experiences come to be seen as part of the disorder.,Copyright © 2007 John Wiley & Sons, Ltd. [source]

Medication errors: the role of the patient

BRITISH JOURNAL OF CLINICAL PHARMACOLOGY, Issue 6 2009
Nicky Britten
1. Patients and their carers will usually be the first to notice any observable problems resulting from medication errors. They will probably be unable to distinguish between medication errors, adverse drug reactions, or ,side effects'. 2. Little is known about how patients understand drug related problems or how they make attributions of adverse effects. Some research suggests that patients' cognitive models of adverse drug reactions bear a close relationship to models of illness perception. 3. Attributions of adverse drug reactions are related to people's previous experiences and to their level of education. The evidence suggests that on the whole patients' reports of adverse drug reactions are accurate. However, patients do not report all the problems they perceive and are more likely to report those that they do perceive as severe. Patients may not report problems attributed to their medications if they are fearful of doctors' reactions. Doctors may respond inappropriately to patients' concerns, for example by ignoring them. Some authors have proposed the use of a symptom checklist to elicit patients' reports of suspected adverse drug reactions. 4. Many patients want information about adverse drug effects, and the challenge for the professional is to judge how much information to provide and the best way of doing so. Professionals' inappropriate emphasis on adherence may be dangerous when a medication error has occurred. 5. Recent NICE guidelines recommend that professionals should ask patients if they have any concerns about their medicines, and this approach is likely to yield information conducive to the identification of medication errors. [source]

Relationship of illness perceptions with depression among individuals diagnosed with lupus,

DEPRESSION AND ANXIETY, Issue 6 2009
Errol J. Philip M.A
Abstract Background: The purpose of this study was to investigate the relationship of illness perceptions, as outlined in the Self-Regulatory Model of illness, with depression among individuals diagnosed with lupus. Methods: A mail-out questionnaire was completed by 154 members of the Australia Lupus Foundation and Lupus Foundation of New South Wales. Each questionnaire consisted of a Lupus Medical and Symptoms Questionnaire, the Illness Perceptions Questionnaire-Revised and the Cardiac Depression Scale. Results: Hierarchical regression analysis revealed that individuals who reported a perception of their illness as having negative life consequences, an unpredictable nature and themselves possessing little understanding of lupus, reported high levels of depression. Conclusions: This study indicated the existence of a high level of depressive symptoms among individuals diagnosed with lupus, and reinforces the need for screening procedures in chronic illness, and treatment interventions that target maladaptive illness perceptions. Depression and Anxiety, 2009. © 2009 Wiley-Liss, Inc. [source]

Preliminary evidence supporting a framework of psychological adjustment to inflammatory bowel disease,

INFLAMMATORY BOWEL DISEASES, Issue 10 2010
Jennifer L. Kiebles PhD
Abstract Background: Adjustment to chronic disease is a multidimensional construct described as successful adaptation to disease-specific demands, preservation of psychological well-being, functional status, and quality of life. Inflammatory bowel disease (IBD) can be particularly challenging due to the unpredictable, relapsing and remitting course of the disease. Methods: All participants were patients being treated in an outpatient gastroenterology clinic at a university medical center. Participants completed a survey of questionnaires assessing illness perceptions, stress, emotional functioning, disease acceptance, coping, disease impact, and disease-specific and health-related quality of life. Adjustment was measured as a composite of perceived disability, psychological functioning, and disease-specific and health-related quality of life. Results: Participants were 38 adults with a diagnosis of either Crohn's disease (45%) or ulcerative colitis (55%). We observed that our defined adjustment variables were strongly correlated with disease characteristics (r = 0.33,0.80, all P < 0.05), an emotional representation of illness (r = 0.44,0.58, P < 0.01), disease acceptance (r = 0.34,0.74, P < 0.05), coping (r = 0.33,0.60, P < 0.05), and frequency of gastroenterologist visits (r = 0.39,0.70, P < 0.05). Better adjustment was associated with greater bowel and systemic health, increased activities engagement and symptom tolerance, less pain, less perceived stress, and fewer gastroenterologist visits. All adjustment variables were highly correlated (r = 0.40,0.84, P < 0.05) and demonstrated a cohesive composite. Conclusions: The framework presented and results of this study underscore the importance of considering complementary pathways of disease management including cognitive, emotional, and behavioral factors beyond the traditional medical and psychological (depression and anxiety) components. (Inflamm Bowel Dis 2010) [source]

Section Editor: Aad Tibben, email: Tibben@lumc.nl: Quality of life and psychological distress in patients with Peutz,Jeghers syndrome

Psychological aspects of adductor spasmodic dysphonia: a prospective population controlled questionnaire study

CLINICAL OTOLARYNGOLOGY, Issue 1 2010
A.A. Kaptein
Clin. Otolaryngol. 2010, 35, 31,38. Objective:, To examine psychosocial concomitants, illness perceptions, and treatment perceptions in patients with adductor spasmodic dysphonia. Design:, Prospective controlled cohort study. Setting:, A tertiary care facility. Participants:, Forty-nine out-patients (38 women, 11 men; average age of 52 years) with adductor spasmodic dysphonia completed a battery of reliable and validated psychometric assessment instruments. Control patients' data were derived from scores in questionnaires by samples in the formal Manuals of the questionnaires used. Main outcome measures:, Psychosocial functioning, illness perceptions, and treatment perceptions. Results:, Scores on psychosocial measures were elevated in male patients especially, indicating levels of psychological morbidity significantly above those seen in the general population. Assessments of illness perceptions and treatment perceptions indicated that patients perceive that they have a very low degree of control over the disorder, and experience a high emotional impact from it. Voice Handicap Index scores illustrated substantial degrees of perceived handicap. Conclusions:, Adductor spasmodic dysphonia is associated with significant negative psychosocial concomitants, coupled with low perceived control over the condition. Future research should elucidate the implications of illness perceptions and treatment perceptions for the biopsychosocial care of persons with adductor spasmodic dysphonia in order to improve self-management and enhance quality of life. [source]